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Black Star
21st July 2007, 04:19 PM
Hi
I'm 16 and I'm being advised to have scoliosis surgery as soon as possible. I have a curve of something like 52 degrees, but at the moment I have no problems with my back whatsoever. It looks fine because of the S shape and is never noticed by anyone! I also never experience any pain or discomfort. Right now, I'm completely happy with my back as it is and so I'm finding it hard to contemplate having surgery.

The only thing that I am worried about is the scoliosis getting a lot worse as I get older and causing me extreme disomfort later on in life.

Has anyone not had surgery and found that their scoliosis got worse in later life? what problems have people had? and has anyone not had surgery and found that their scoliosis didn't progress? also, has anyone not had surgery and wished that they had had it?

Sorry for so many questions! - I'm really struggling to decide whether to have surgery or not :s
Thanks so much for any advice!

crkcallie
21st July 2007, 08:32 PM
Hello Black Star. I was hoping someone on the forum would ask questions like what you are asking. I am 22 years old and I have not had the surgery. I cannot either. My curves have all gotten worse and they continue to progress. I have trouble breathing because of the scoliosis and a lung disease that I have. I was going to see orthopedic surgeons and they were constantly pressing me to get the surgery, which I refused and still do. I recommend looking into other options before you decide on going the surgery route. The surgery recovery time is long and difficult. I hope this information helps.

sg-ni
21st July 2007, 09:04 PM
Hello.
Im in the same boat as yourselves, ive been out of the brace a few years now and like yourself ive had no problems with my back, no pain, can do all sports and its not noticable; ive no idea on what degree it is but the doctors described it as moderate to severe (looks more or less like the letter S on X-ray). On my final appointment with my doctor he said that my curve will likely progress over time.

I second the OP's questions as I am a bit concerned if I would likely end up in much pain when I am older, because I can assume it would be best to get surgery done when younger so you would heal better :???:


Thanks

crkcallie
22nd July 2007, 04:23 AM
That's good that you are able to do sports. Unfortunately, I am in a position where surgery is not and never will be an option for me. I was in a bracing program before and I did not like it at all. So, my only option is doing yoga stretches for the rest of my life. If you decide to get surgery, I wish you luck with it.

Amazed Jean
22nd July 2007, 09:24 AM
It is with much sadness that I tell you that scoliosis does progress without surgery. While you are young see a good scoliosis specialist and have surgery.

My scoliosis progressed horribly. I was first seen by a doctor my back was only a little uncomfortable when I over did things like mucking out stalls or dragging hay bales around. My curves measured 68 degrees and 33 degrees. I was 14 years old. Now at age 56 years old, my curves are 150+ degrees, 88 degrees, and 50 degrees. My spine now interferes with my heart and lungs to the point that no one wants to try surgery. I am on full time oxygen and sleep with a bipap machine on. I tire so easily that I need a motorized scooter to get around even places like the grocery store. I really wish that when I began noticing the curve that my parents had taken me to more than one doctor or better yet I wish there were scoliosis specialists and we had gone to see one.

I really think you young people have it made. I mean I know it sucks to have scoliosis but you can have surgery and be up and around in no time. Your youth is a big bonus for healing. There are a few younger people that cannot be treated with surgery but they usually have other complications.

I will also tell you that life goes on if surgery is impossible. I mean I have a college degree, taught school, been married over35 years, have a daughter and grandchildren. Some things are a real fight but I get determined and go for it. I hope you do the same.

Black Star
22nd July 2007, 01:30 PM
Thanks for all the replies!

Coloradogirl, sorry to hear about your scoliosis. If you don't mind me asking, what made you refuse to have the surgery? Also, you talked about taking routes other than surgery. I have tried physiotherapy but that didn't make any real difference and I have been told that the curve is too big for a brace to be effective. Do you know of any other routes that i can try?

Jean, i'm pleased to hear that you're doing well despite your severe scoliosis. Thank you so much for telling me about your scoliosis! Were you able to try anything to help your scoliosis when you were 14?

And Sg-ni, it's comforting to know that someone else is in the same boat. Hope you decide what to do!

GillyG
22nd July 2007, 09:03 PM
I wasn't offered surgery when I was younger and by the time it had progressed I was told it was too late! My pain got worse and worse and I began to suffer all sorts of other health problems which I didn't really relate to my scoliosis. Then at 49 I was referred to a new consultant who was prepared to perform the surgery and I have never looked back. Don't get me wrong, recovery has been long and hard at times, but no comparison to what I was suffering before. Also, my other health problems have either improved or completely resolved! I would urge you not to dismiss the idea of having the surgery while you are young as the toll on your body is so much less and the healing and recovery so much easier.

Good luck with whatever you decide.

Gilly xx

sg-ni
23rd July 2007, 01:18 AM
@GillyG: Thanks for your reply. I might see and have a word with my doc and see what he thinks...because it is something im very concerned about in later years. Espically ending up possibly having breathing bother and 'stooped' to a side (cant think of a better way to describe it). Or am I sortof overreacting a bit? :-?

@Black Star: Will do and all the best with whatever decision you decide to make!. As said above ill maybe have a word with my doc about it and see what he thinks. In an ideal word I would prefer not to have it, espically have ~17 years of wearing a cast/brace too :evil:. Are your doctors making you wear the brace at the minute to try and keep the curve somewhat 'under control' or have they sortof ruled that out of being any sort of way of controlling its progression?

@Amazed Jean: Thank you for your reply aswell and for sharing your experiance. I lurk about here mostly so Im not really familar with each persons individual case!.

Reading on this progression has really got me confused and miffed to be quite honest. Im in good physical shape and all. I dont want to have problems when older, but I really feel like I dont want to have to put myself through a surgery when I am in no pain or having no problems at the minute...if you understand where im coming from :-?

Amazed Jean
23rd July 2007, 03:39 AM
My point is not to ignore your spine. Keep a very close watch but prepare yourself to have surgery some day. Scoliosis does progress. It will threaten your well being and your life if it gets as bad as mine. I so wish that someone I had seen early in my life had offered surgery. Oh and it's not overreacting to worry about your spine. It really effects your entire body.

chirpydan
23rd July 2007, 05:59 PM
Scoliosis can be very progressive indeed. Every curve is however very different. A 16 year old is unlikely to progress rapidly due to skeletal maturity but no-one can predict what your individual curves will do, not even your consultants which is why they monitor you say every 3 or 6 months.
My daughter is 12 and her curves are progressing at a rapidly increasing rate. You can practically watch her becoming more deformed month by month. Her surgery is on September 5th and we cannot wait for it to stop this progression. Her cousin's curve increased by 27 degrees in just 3 months. They both get uncomfortable despite their age.
From a personal point of view I would recommend surgery. I don't think there will be any looking back, but of course it's a decision you will need to make yourself.
I wish you loads of luck x

crkcallie
24th July 2007, 12:58 AM
Hi Black Star. What made me refuse surgery is that I have a lung disease that makes me have a limited amount of lung capacity. It has a really long name, but the short name for it is Chronic Lung Disease. My lungs are scarred up from being on a ventilator for way too long during my first few months of life. Because of how bad my lungs are, I am not able to have the surgery. Not only that, but after hearing what my lung doctor told me about probably not being able to get me to recover from the surgery alone scared the heck out of me. So, I opted for other solutions, which there are some. I tried a bracing program and that did not work out. My only other option is to do yoga stretches for the rest of my life. Here is an example. I went to work today and came home with my back aching so bad that I wanted to cry. I lied down on the floor and stretched my back for several minutes. After just those several minutes of stretching, my rib cage was not sticking out as much and I could breathe so much easier. I recommend looking into a yoga class or something for your scoliosis. Oh, and just so that you do not get alarmed, the popping in your back you start to hear during your stretching, means that the muscles are being broken up and retrained to hold the spine the way it is supposed to. I know it sounds disgusting at times when you hear it, but it feels great after. If you have any other questions, feel free to send me a message on here. I would love to hear from you.

Julia J.
24th July 2007, 04:02 AM
Dear Black Star,
I'm a 49 y.o. woman. I work as an RN (on my feet all day) and have begun to feel "different" , I feel like I'm spiraling to the left as well as not able to breathe as easy at night. I had a spinal fusion done when I was 12 by Shriners Hospital in Chicago. I had been in a brace for almost 2 years when they told my parents that I was growing too fast and the brace couldnt hold it anymore. I thank God for my surgery because I had zero pain after I completed my recovery and went on to have 3 textbook pregnancies (kids are now 29, 27 and 25 and their backs are perfect!) I look back and realize that if I hadnt done anything while I was young and still fairly pliable, I could have ended up looking like Quasimoto. I can still touch my toes and I have worked hard to keep my weight down and my muscle tone up and the fusion has held up well for nearly 40 yrs. But now that I'm middle aged (where did the years go?!!!) I am willing to have surgery again if it is needed to give me 40 more productive years. I DO NOT WANT TO BECOME AN INVALID and have my loved ones having to care for me if at all possible. But I'm also looking into the possibility of using the Spinecor brace if I can find any research that supports its use in adults. Think very hard about what you choose to do sweetie. You are so young and you have your whole life ahead of you but you want to be as fully functional as possible. Dont pass up an opportunity to rescue your back from needless curving and strain. None of your internal organs or supportive muscles will be able to perform the way they are supposed to if your back continues to curve. Praying for ya. Julia J. :-)

lady p
24th July 2007, 11:15 PM
Hi, Im 49 and was diagnosed when I was about 10 or 11, surgery wasnt an option then. I didnt suffer with any real pain until 10 years ago - not warming up properly before playing squash - the next day I could hardly stand. I spent the next 10 years receiving treatment at pain clinics, this is only very temporary relief, however they never treated the cause. The consequence of this is that my curves have progressed - I only had one as a child - now I have an S shape spine.

Having found this site recently and read through the many, many threads has assisted with my decision to have surgery. This should be at the end of the year or early New Year. Although I am feeling very apprehensive and scared about the whole process, Im looking forward to the quality of life it will bring.

Only you know what will be the best for you, do your research and Im sure you will make the right decision.

Take care & be lucky

Lady p xx

nutmeg
25th July 2007, 12:59 PM
Hi Black Star

As others have said, scoliosis is usually progressive, but the progression is much slower once you stop growing. Unless your curve has progressed very rapidly in the last year or so, I am puzzled as to why you doctor thinks the need for surgery is urgent. If you are going to have surgery it is certainly better to have it while you are young - you will recover more quickly, and the surgery has a better chance of reducing your curve. However waiting a year or two , if you want to get exams out of the way first, or something like that should not make a significant difference.

I personally haven't had surgery. My curve was smaller than yours when it was last measured accurately ( 43 degrees at age 13 and a half). It had increased only 2 degrees in the previous year, which is less than the margin of error. I'll be 50 in December, and still have no real problems with my back. I don't know how much my curve has increased, but I don't think it is much as I haven't got any shorter. However, statistically, your curve is more likely to progress than mine, so if you decide not to have surgery now, it is important to get it checked regularly.

Srey
26th July 2007, 08:59 PM
I find this discussion very interesting. I never had surgery; doctorís said I didnít need it. My scoliosis was found when I was 12 and I worn a Boston brace from 6 to 9th grade. Then worn it at night for one more year. After that year I never went back for checkups, is that unusual. Top is an S shape and if I can remember it was 32 degrees. Couldnít tell you about the bottom.
My left shoulder blade sticks out more than the right.
Iím in my 40ís now and it seems my back hurts more now. I do yoga/pilates and that seems to help.
I always wondered if my scoliosis would progress.

IHeartUxo
1st August 2007, 12:59 AM
Actually, mine has gone down since I got my brace. I wish you luck with your situation!

GillyG
1st August 2007, 05:56 PM
Well, mine certainly progressed, despite being told as a teenager that it wouldn't! :P

Once I got to my mid 40's, the progression became very rapid until last August, (aged 49),when I had surgery to correct and stabilise it. At the time my curve measured 80 degrees, now it's only 47! :D

Gilly xx

Abbi
1st August 2007, 11:07 PM
Hi there,

I was 17 when I was diagnosed with scoliosis (I am 20 now) and at first measurement my curves were both 80 degrees. My spine looked like an S also, so I managed to go through life for goodness knows how long with scoliosis. I noticed that I had an uneven waist, "sticky-outty" ribs and uneven shoulders probably from age 8, but didn't realise the significance of it until I started getting pain.

I would definately think about having surgery at some point. I have been told had I choose not to have the surgery my curves would progress by 1 degree per year, so basically by the time I would reach 40, I would have curves of over 100 degrees.
I think surgery at your age now would be a lot easier on your body, young people tend to recover quicker, and having a young (possibily more flexible spine) you would get a better correction. So I guess you need to weigh up the pro's and con's of the surgery. My spine is almost fully fused from top to bottom, and I don't think there are many adverse effects. I can do many activities - I just can't "muck" in with some things that I would like to. I do feel stiff, but I'm quite flexibile

I hope that has helped somewhat

Abbi

sadie
4th August 2007, 04:12 PM
:-) HI, my daughter is having surgery on the 15th Aug. It is a huge question, wondering if we are doing the right thing.But rebeccas curves increased a lot in the last year, she is not in any pain at present. i think we are doing the right thing , she's 17 now , it may keep getting worse if we don't do something.

Black Star
9th August 2007, 02:04 PM
Wow, there have really been a lot of replies to this! Thanks everyone - i've found everything that people have said really interesting and helpful!!

I have a feeling that this might be quite a long reply...

Firstly, ChirpyDan , I wish Lauren all the best of luck with the surgery and Sadie , It sounds like Rebecca's in pretty much the same position as me. I hope that the surgery goes really well and I'd love to hear about how you get on!

Also, Lady P it's interesting that your scoliosis only started to become a big problem for you 10 years ago. I'm glad that you've made the decision to have surgery and I hope that it all goes really well for you.

Nutmeg, if there's one thing that i've seen from these responses it's that everyone's curves progress in very different ways. It's encouraging to hear that your curve has not progressed every year so thanks for that response! In the last year my curve has progressed from something like 42 degrees to 58 degrees so I suppose that that is why my doctor feels that

Black Star
9th August 2007, 02:56 PM
Wow, there have really been a lot of replies to this! Thanks everyone - i've found everything that people have said really interesting and helpful!!

I have a feeling that this might be quite a long reply...

Firstly, ChirpyDan , I wish Lauren all the best of luck with the surgery and Sadie , It sounds like Rebecca's in pretty much the same position as me. I hope that the surgery goes really well and I'd love to hear about how you get on!

Also, Lady P it's interesting that your scoliosis only started to become a big problem for you 10 years ago. I'm glad that you've made the decision to have surgery and I hope that it all goes really well for you.

Nutmeg, if there's one thing that i've seen from these responses it's that everyone's curves progress in very different ways. It's encouraging to hear that your curve has not progressed every year so thanks for that response! In the last year my curve has progressed from something like 42 degrees to 58 degrees so I suppose that is why my doctor feels that i ought to have surgery. I have however been told that the curve may, or like yours, may not progress once I have stopped growing. It is this uncertainty that makes the decision as to whether or not to have surgery such a difficult one. Thanks also for your advice! it sounds like a lot of people recommend having surgery young, and I will definitely take that into account. Were you advised to have surgery when you were 13 or not?

IHeartUxo , unfortunately for me having the brace is not an option, but I am pleased to hear that the bracing actually reduced your curve! :-)

Thanks Julia J . I hadn't realised that sometimes it's necessary to have the surgery a second time, later on in life. I had sort of assumed that once you had the surgery, the curve would not progress any more. I am so pleased that the surgery has worked out for you so far! How bad was your scoliosis when you were diagnosed at 12?

Colaradogirl thanks so much for both of your replies! yoga sounds like a great idea! I am going to try to take it up whether I decide to have surgery or not. does your back often ache as badly as the way you described it in the last reply?
Srey thanks for suggesting yoga and pilates too! have you considered finding out if your scoliosis has progressed?

Ok, so Sg-ni no the brace has been ruled out for me. I was offered one a few years ago but decided against it mainly because of the inconveniance (and also because I wasn't too worried about my scoliosis) but the curve progressed and apparently now it is too large for a brace to be effective. Are you wearing a brace at the moment?
I completely agree with you about not wanting to go through surgery when you aren't experiencing any problems at the moment. (One big thing for me is that I do quite a lot of sport and not being able to do contact sports for two years is a pain).
I am starting to consider the surgery more seriously now for two reasons though. Firstly, reading through some of these repliesI've become more concerned about what could happen if the curve progresses by 1 or 2 degrees a year. And secondly I have started to notice that my back hurts quite a bit when i go running now (does anyone else find this?) and so I am worried that the scoliosis is getting worse at the moment and about how much worse this could become.
The main factor that puts me off surgery though is the idea of a 1 in 500 chnace of paralysis. Is that really a worthwhile risk, when I don't know if i really need the surgery or not?? (as scolisos does not always progress after adolescence!) :s

Gilly G your surgery sounds really succesfull!! Thanks for telling me about it. It's good to know that surgery can be succesfull later in life, but also thanks for the advice about having surgery young. A lot of people seem to suggest this and I will definitely take that advice on board when making a decision! Well done for getting through the recovery process! :-) you mention having had health problems related to the scoliosis - could you give me any more details about these?

Abbi, your reply has definitely helped! thank you! It sounds like your scoliosis was much more severe than mine is, but I also have a slghtly uneven waist, "sticky-outty" ribs and alightly uneven shoulders. One thing i've noticed in particular is odd shoulder blades and uneven hips. I'm glad that the surgery worked out for you. I know that you've lost some flexibility but can you still do sports?

Black Star xxx

nutmeg
11th August 2007, 06:28 AM
Hi Black Star

The first time I saw the scoliosis specialist, when I was twelve, he suggested that I have surgery, not because he thought the scoliosis would cause me any physical problems, but purely for cosmetic reasons! My parents agreed with me that if it was purely cosmetic I need not have the surgery. A year later, despite the fact that there was no significant increase in the size of my curve, he apparently told my parents ( I was not present), that without surgery I would probably be in a wheelchair before I was 30! This time my parents agreed to surgery, and I was placed on the waiting list. However the wait was so long that by the time I got to the top I had passed my sixteenth birthday and they couldn't operate without my consent, which I refused to give. During that wait I was not monitored at all.
I must stress that this was a very long time ago, and knowledge of scoliosis has improved since then. Also, I think it was unknown then to perform scoliosis surgery on adults - if you were going to have surgery it had to be while you were in your teens! I think that nowadays most specialists would treat cases such as mine (40-45 degrees) in someone who has finished growing as a borderline case, and monitor it, rather than recommend immediate surgery.

Black Star
11th August 2007, 11:25 AM
ok, i was told at first that surgery was purely for cosmetic reasons and i came to the same conclusion as you: that that just wasn't worth undergoing surgery for. It's only recently that I've started to be told about possible health problems.

I'm impressed that you managed to refuse surgery despite being told that you could end up in a wheelchair! how did you manage to come to that decision?

sg-ni
12th August 2007, 08:35 PM
@Black Star -

Na im not in the brace at the moment, been out of it for about 3 or 4 years now after wearing braces and casts for the best part of 18 years.

I do a bit of sports also, football (soccer) twice a week usually. Like you, i get some pain occasionally on the lower right hand side of my back when sprinting but its not too bad, its not that sore but its enough to feel that its there, sortof like a dull ache is the best way to describe it. Ive had that since ive been out of the brace.



I am starting to consider the surgery more seriously now for two reasons though. Firstly, reading through some of these repliesI've become more concerned about what could happen if the curve progresses by 1 or 2 degrees a year

I agree with you on this, I was told on my final appointments that it would most likely deteroriate over time but nothing was said in much more depth than that really...some things posted here have made me more aware.
If I knew for sure, or that there was a big chance that I would have bad problems when older I wouldnt really have much second thought about it...but its hard to know :@. I think I read somewhere on here that it progresses by ~0.8deg per year on average (??)

nutmeg
13th August 2007, 02:58 AM
Black Star
Mainly I still refused because I didn't believe I'd end up in a wheelchair. I didn't see how the prognosis could change so drastically, when the curve hadn't changed significantly. I felt the surgeon was just being alarmist because he wanted to do as many surgeries as possible. The fact that he hadn't felt the need to check on my back during the 3 year wait reinforced my opinion of the surgeon.
Also, scoliosis surgery was very different then. It involved 4-6 weeks in hospital, immobilised to keep the spine straight while it began to fuse. To me this was much worse than being in a wheelchair, where I wouldn't lose my independence. (There was never any suggestion that the scoliosis would paralyse me, just that my lung capacity would be so restricted that I would be too breathless to walk)

sg-ni
The problem with predictions of progression is that they are just averages, they can only be a general guide to individual cases. Some curves appear to be stable for years, then start progressing again. There is still a lot to be learnt about scoliosis.

Rachie
18th August 2007, 11:12 PM
Just to say this discussion has really helped me. My daughter is 7 and having her first growth rod surgery in September. She is completely fine with no pain and sometimes I wonder if we shouldn't just leave her as she is. But now I realise she needs intervention now and I'm much more confident that we are doing the right thing.

Thanks!

Rachie x

GloomCookie
23rd August 2007, 04:58 PM
I think you can't be too careful with monitoring yourself, regardless of what anyone says about how it looks, you know how it feels!!

I was 21 when I was diagnosed, I had 35 degrees S curve and a bit of rotation which wasn't really bothering me at all. At 25 I now have a fifty something degree curve with significant rotation that is painful, uncomfortable and getting in the way of all physical activity.

I had to battle my GP and the orthopaedic specialist to get referred on further as they were both convinced it hadn't worsened and I was just being sensitive about my appearance, cosmetic reasons.

I'm now waiting for an MRI scan and will be having the surgery if I can because if it can get that much worse in four years I don't want to wait and find out how bad it can get! As everyone has said, I'd much rather do it while I'm this age, fit and healthy and able to recover in a shorter period.

Black Star
26th August 2007, 03:05 AM
Nutmeg, it's refreshing to hear from someone on this site who isn't stressing that surgery is vital. Thanks for giving another viewpoint to this discussion!


I felt the surgeon was just being alarmist because he wanted to do as many surgeries as possible. Although they trust the surgeon, this is the exact concern that my parents have. They are 100% against me having the surgery, however all the medical advice I've received, tells me to have the surgery. It's very difficult to tell whether the surgeon is overreacting and just following procedure or whether my parents are over-reacting and are too scared about me having the operation.

GillyG
26th August 2007, 01:33 PM
hi Black star,

I was wondering, whereabouts in the world do you live? It's just that, unlike in the US, Consultants in the UK don't get paid for how many surgeries they perform. In fact, it makes their life easier not to do surgery as they get paid the same anyway! It follows then, that if you are UK based, the consultant is unlikely to be recommending surgery unless it's absolutely necessary, whereas if you are in the US, that may well not be the case.

Hope this helps.

Gilly xx

scolioscott
29th August 2007, 09:26 PM
What a great long thread, and this is the first time I've seen it!

Very interesting read, and obviously everybody has their personal views, but I think you can comfortably take your time to make such a huge decision. Whilst you're not too bothered about the looks or discomfort, it can't be that urgent. Over time, I think decisions become far easier as you gather new information and views along the way. Something will happen over the next few months to make your desision easier to make - I dont mean anything bad, I just mean sometimes you can wake up one day and know the right thing to do.

We have never been in two minds as whether or not to operate on Chloe as her progression has been so fast.

I hope you get there soon so you can get on with your life - scoliosis seems to have a bad habit of getting in the way of life!

H 8)

Amazed Jean
29th August 2007, 11:38 PM
Black Star, I so get that this is a great big, huge, enormus, gigantic decision on your part. But, being a Mom I totally understand your parents point of view also. It is always twice as scarey to worry about a your child's health and accompanying problems /surgeries etc. It's called parental love. Be sure you thank those parents for their painful watching and caring. Good Luck in whatever you do. Hang out here when you can we are all here for you no matter what you chose to do.

Thaleias spirit
1st September 2007, 12:53 PM
Generally, curvatures less than 30 degrees will not progress after the child is skeletally mature. Once this has been established, scoliosis screening and monitoring can usually be stopped. However, with greater curvatures, the curvature may progress at about 1 degree per year in adults. In this population, monitoring should be continued.

Taken from: http://www.rad.washington.edu/mskbook/scoliosis.html




This would have happened in my own case. My scoliosis although was ofically detected at age 8 was not monitered. The first official assessment and xrays I had were 2 years ago and at that point the curve was 155 degrees. and was continueing to curve. People have told me now that over the years they could see the difference and how it was getting worse but noone actually told me at the time, and as my pain was manageable then I didnt dwell on it.


It's hard to know what to advise in your circumstances. Perhaps another opinion and if you are still gainst doing surgery for the moment then just have xrays done every 6 months to ensure that its not progressing?

equinerider4life
5th September 2007, 12:43 AM
I had 38 degrees and was put out there of surgery but wasnt recommended. I personally didnt want to go through that long very painful thing. So t{in hope} prevent my back from getting worse i was put first in a night then in day. After the night brace i had increasesd from 27 to 38 degrees. I then got a day brace it was awful but i pulled through and by the end of that year he said my bones were maturing and almost completley mature so i got slowly off it. I am curently 15 going on 16.
If you have no pain or issues tell them you dont have any of the normal issues and if your degree is liveable. Their big concerns are your health down the road. If increased there are risk of mayn organs damanged depending on where the curve is going. If they feel it will get worse i would recommend trying a brace it may be found annoying but it is better then almost a year to get back on a normal life let alone the risk of pins popping out of place or something going wrong inside. many people have cmoe out fine but ive heard the bad ones too. My degree is now 31(well the last time i was there) so the brace even brought it down which can happen.
Best of Luck

Tracey89
2nd October 2007, 12:38 AM
Hi Black Star i am currently in your situation, Im now 18 and the doctors found out i has Scoliosis when i was 14 or 15 years old.

At first i had the one consultant who said that the operation would be for "cosmetic reasons" another constultant wanted me to have the operation there nd then (litterally), I have not ad a brace or anything and the last two check ups my curve has not altered :) but I have had operations when i was little (Ive had 6 so far! for different medical reasons!) the doctors scare me by telling me about the downside to the operation such as,
*An allergic reation to anersetic
*Being Paralysed
*dying! (Im not trying to scare you at all! this is what the doctor told me!)
and somthing else too but cant rember.....


I think I will probs have the operation if needed but its up to you. talk o your doctor at your next appointment.

Hope everything goes well!

XxTJxX

Black Star
2nd October 2007, 07:10 PM
don't worry tracey, i've heard all the risks too and they are scary.
I have just sarted physiotherapy in Bishop Stortford (UK) and I'm going to do that for the next six months. The physio thinks that she can cure the scoliosis. If not, i'll consider surgery but i'm really hoping that physio works out!

Amazed Jean
2nd October 2007, 08:35 PM
Good Luck with the physio. Please keep us posted - there are lots of people here that I am sure would be interested in your outcome.

jamielynn
4th November 2007, 07:08 PM
DO THE SURGERY I ALSO HAVE THE EXACT 52 DEGREES AS YOU, AND MINE IS IN AN S SHAPE>>> GO ONTO YOUTUBE, TRUST ME THIS WILL MAKE UP YOUR MIND TO DO THE SURGERY.. IM GOING TO IN THE SUMMER.. GOOD LUCK!!

Black Star
4th November 2007, 10:01 PM
wow you seem pretty sure Jamielynn! what makes you so certain?

and what do you mean by go on youtube?

right now i'm sticking with the physio but if it doesn't work out i might consider surgery. Good luck with your surgery!