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cindyj77
29th June 2007, 04:46 AM
My 11 yr old daughter was diagnosed with scoliosis this past spring, and we found out she will probably start wearing a brace this fall. She has a 29 degree curve. Just curious what kind of braces you all have had experience with and if anyone has used the spinecor brace - looks very interesting as my daughter is extremely involved with sports.

gerbo
29th June 2007, 08:13 AM
Hi and welcome. On this forum there are 2 spinecor users. My daughter Laura has had the spinecor for the last 1 1/2 year (having started with a hardbrace) whilst "rugbylaura"'s daughter just started last month.

Our experience with it (which is overal good) can be read on this thread http://www.scoliosis-support.org/modules/i...&showtopic=2635 (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=2635), whilst laura has been writing under http://www.scoliosis-support.org/modules/i...&showtopic=4417 (http://www.scoliosis-support.org/modules/ipboard/index.php?s=&showtopic=4417)

If you have lots of time; there is an enormous long thread on the NSF site (more america orientated) which is worth visiting anyway http://www.scoliosis.org/forum/showthread....33&page=1&pp=15 (http://www.scoliosis.org/forum/showthread.php?t=2733&page=1&pp=15)

I am aware that your very short post and questions hides an awful lot of worry and heartache. You'll find that this and other forums will be very supportive and will help you to make all those very difficult decisions and provide lots of emotional support.

Once you've read up happy to answer any questions you will have.

By the way; which hospital have you been going to? (mmhh, from the timing of your post, I bet you are in the USA or Canada)

take care

RugbyLaura
29th June 2007, 10:53 AM
Hi Cindy and :welcome:

Another giveaway that you're from the other side of the pond is your use of "fall" (English tend to say Autumn), we're a bit old-fashioned :D

Immy has never experienced a rigid brace, she went straight into Spinecor. I found out about it through forums, in particular the NSF forum that Gerbo mentioned. We are not offered it locally so have to travel 90 miles each way once every 3 months. Not too far by American standards (practically local) but quite a trial for us Brits.

We have been surprised by how easily she has adapted to the Spinecor, although I imagine older children would have more issues with how much is visible when wearing certain clothes. Immy doesn't seem bothered and wears it with no complaint :angel: The worst thing so far using the loo :woe: It's quite fiddly. Also, seeing your child wearing the contraption is much more distressing (to the parent) than the photos on the Spinecor literature would suggest. That said, I'm sure a rigid brace would be much worse.

Immy is extremely unlikely to avoid surgery, given her age, height and degree of curvature. However we and her consultant feel that this brace will give her the best chance of holding the curve until she has grown to as near to her full potential as possible.

I wish you and your daughter good luck, please feel free to ask any further questions. There are many people on this site with experience of rigid bracing, most of them find it not too bad a deal. One thing I would say though is don't let things go on too long. My biggest regret is that so much time has been wasted getting to where we are now and in that time her curve has grown at least 10 degrees.

Having said that, I now have to say "don't worry too much"!!

Laura :squeeze:

RugbyLaura
29th June 2007, 11:20 AM
By the way Cindy - there are other types of braces, but none used in the UK (to my knowledge - correct me if I'm wrong forum members). We were quite interest in night braces (such as Providence) but it's not an option over here. Another is called Cheneau (sp?). But I'm sure you will have discovered all this already.

Laura X

RugbyLaura
29th June 2007, 12:16 PM
Hi and welcome. On this forum there are 2 spinecor users. My daughter Laura has had the spinecor for the last 1 1/2 year (having started with a hardbrace) whilst "rugbylaura"'s daughter just started last month. Don't forget Sealy with Deirdre!

sue1958
16th August 2007, 08:51 PM
Hi to all SpineCor users

My daughter started with SpineCor brace last month - 20th July at Cambridge. Follow up appointment tomorrow but at Sheffield so a bit of a trek, 170 miles! Seems to be doing ok, so very interested to read other users comments. I suppose we won't know if it is really working for Jo until 6 months down the line, so fingers crossed. Has everyone found it effective? Finding it all a little stressful.

RugbyLaura
16th August 2007, 10:18 PM
Hi Sue,

We're only a month ahead of you, we have days when life feels very hard & days when it feels near normal. I still cry sometimes.

I'd love to know more about Jo & your Scoliosis journey. Our next appointment in Sheffield is 21st September. Shame we're a month apart.

Have you looked on the NSF forum?

Laura

RugbyLaura
16th August 2007, 10:19 PM
Oooh sorry, forgot to say :welcome:

X

equinerider4life
4th September 2007, 11:51 PM
When i had 27 degree curve i was giving a night brace...i was 13 years old. After a year it increased to 38 degrees and i was giing a day brace. I dont know the name but it is differnt then any one elses i have seen/heard of. Im not sure how much it s but there is a newer more fitting brace out there so kids can go to school in regular clothes and move around much easier but i do not much detail on this brace. It was shown on NY1 one time, i wishing i had heard of it when i had my brace it would of made life so much easier. But i would look into that. This is what my brace looked like
http://img.photobucket.com/albums/v113/NataDancenet/pics/1545090272_l.jpg

jamielynn
27th November 2007, 11:38 PM
I am, and have been using the Boston Brace for 2 and a half years. I find it rather uncomfortable, but I just learned that I have to cope with it. Unfortunatly, My brace hasn't held my curve properly so I got a new one. I'm not sure what my degrees are at the moment, but I do have double-major scoliosis. Good Luck with your brace choices, There are far more to choose from, But this one is really helpful. :niceone:

crkcallie
28th November 2007, 03:46 AM
There is this other brace called the Copes Scoliosis dynamic brace. I don't recommend it, but it's another one out there.

Bren
26th January 2008, 07:09 AM
I had the Milwaukee brace I wore it from near the end of elementary school until the beginning of highschool...been brace free ever since