View Full Version : New guy
20th August 2004, 11:54 AM
I have scoliosis, no great suprise there and being male I suppose that puts me in a minority. I shouldn't complain too much though about my condition because the surgeon who told me I had scoliosis said, and I quote "Ive seen worse". You could be forgiven for asking why a surgeon was telling me I had scoliosis. I reckon by the time most people see a surgeon, they would probably already know. Well, not in my case. Ive had back pain between my shoulders for as long as I can remember. Its could be so severe I could hardly move, then it could go away and be totally non existant for as long as a year or so. Ive been in agony in the morning and actually played squash in the afternoon with no ill effects at all. I never knew why this was, and just got on with life. Then in 1999 when I was 39 my life changed quite dramatically. I had put a lot of weight on in the 90,s. I was deppressed and looking back have now realized I was under a lot of stress too. Something 'give'. I dont know what. I was at work and my whole body went into what I was told later was a panic attack. I didnt beleive it then and I still dont believe it now. To me it felt like some one had hit every reflex point in my body at the same time. I thought I was having a heart attack, I was convinced my time was up. Classic symptoms of a panic attack yet there were other things that didnt add up. To shorten the story dramatically, I ended up a nervous wreck. I was continually getting chest pain yet was told my heart was fine. On one occasion I had cause to say to my specialist that I thought sometime I could feel these pain eminating from my back. I was told straight that theres is nothing wrong with my back and was duly sent to a psychiatrist. I spent four week in a private hospital with 'an anxiety and panic disorder'. All this time I was not happy with this diagnosis, but I do admit that I did end up this way and believe it to be the symptom and not the cause. I lost 4 stone in weight, ironically this made me feel great though I wouldnt recomend this as a dieting tool. After time I went back to work, I took up drumming in a band, something I'd given up in the 70,s. The wife and kids thought Id finally 'lost it' as they had never seen me play anything. (now my missus never misses a gig) By 2002 my back pains were getting worse and also my chest pains. I was in danger of going down the same road again. I went to the only doctor I saw these days who was of course my psyhchiatrist. I asked him to refer me to a back specialist to check it out, and this he did. This guy was a surgeon, and not very pleasant. His persona said I was wasting his time. He got me to bend over a couple of times (how he failed to spot the problem I dont know) Then he asked me what I wanted him to do. I was made to feel very awkward but on persistance he sent me down the corrido for an x ray. An hour later he stuck the slides on the light box on the wall and his exact words were 'well this is your problem right here'. I couldnt see a problem for a second or so until I realized that both the x rays (one from the side, on from the front) had curves in them. I was looking for the sraight one. The surgeon spotted my expression and said 'you didnt know anything about this?' No I said. Not a clue. His whole attitude changed and he remarked that my psychiatrist would be very interested to know this. I was still in a bit of shock. How I could get to 42 and not know anything about it bewilderes me. When it was pointed out it was so obvious, well, to the informed anyhow. I asked my wife what she could see from the back and my displaced ribcage, as far as she was concerened was just 'my shape' . These chest pains have since been put down to, I think its called Tetse Syndrome (maybe you can correct me) which is pain caused by inflamation of where the ribs join because of abnormal pressure on them. I found a web site which said these pains can mimic cardiac pain, WHAT? I thought. Maybe you can imagine that sometimes I feel like I dont know what caused what. Theres a lot more stuff that has happened but thats the general story. I,m 44 now and after my short 3 years of learning to play the drums again and getting in a band (www.tflrock.co.uk) I may have to give it up because of the increasing discomfort and pain as the doc said arthiritis has set in.
Well ive waffled long enough so i,ll be off for now. Ive enjoyed looking through the site and checking you guys out. A lot of you have had a tougher ride than I have so I aint complaining to much. So take care and thanx to the site builders for thier time and effort.
ps, I,ll sort out the profile bit some time soon.
20th August 2004, 11:57 AM
Welcome to the site Ian :welcome2:
Woo hoo, another over 35 person.:cheers:
Where do you live?
I'm 38, live in Dublin with hubby and four year old daughter and had surgery aged 13 for a fairly serious curve.
One of the things that has amazed me since I joined this site is how many people go through their lives with undiagnosed scoliosis. :-? You really came to your diagnosis the hard way. I hope you find this forum to be useful. We all have wonky backs of one kind or another and have some idea of what everyone else is going through. We have a bit of a laugh as well. :nutter:
20th August 2004, 12:03 PM
Yes your right there's not too many of us blokes around the regulars are me, tim, jonny and ivanleg sorry if i missed anyone out.
Welcome to the site i am sure you are going like it here everyone is really friendly and supportive to one another
You will find that people here on the site are at various stages in treatment some have had surgery and looking for revision, some have had surgery, some are waiting for surgery and some have never had surgery.
So you will find a wealth of information on the site.
Once again welcome to the site
20th August 2004, 12:13 PM
Welcome to SSO Ian! I hope that you can find some answers to your questions and realise that you are not alone in any of this. I hope to that you feel welcomed enough to join our little family.
20th August 2004, 12:23 PM
It's always great to welcome someone in the over 35 bracket.You'll find lots in common with Ivan, Tim and Mark.I think the pain you're describing sounds a lot like Mark is feeling at the moment with the rib pain.I'm just 37(from Cork, Ireland) and have lived with scoliosis most of my life.When you have a family it gives you a different outlook on your condition and makes it a bit more difficult to "give in" to your symptoms.
Your story is still all too common in UK/Ireland and there are many out there like you who have suffered for many years not realising whst's been going on inside your body.I'll most likely find myself reading your story over and over again to try to understand the trauma you 've gone through.Anything we can do to help ...please just ask and feel free to post your thoughts.
20th August 2004, 12:28 PM
Welcome to the site Ian! :D You'll like it here :welcome:
20th August 2004, 01:07 PM
Welcome! I'm sorry you had to find out the hard way. If there's more you want to ask or talk about, feel free to do so!
20th August 2004, 01:29 PM
Hi Ian :welcome2:
Unfortunately there are doctors out there whose answer to anything they don't understand is to send you to a psychiatrist - I only barely avoided that myself in the late 90s for other reasons than my back. I'm really sorry that you ran into the same sort of problem, but at least you eventually got referred to find out what the problem was.
I hope you enjoy your time here though, there's a lot of friendship and support to be found here :D
20th August 2004, 01:48 PM
Originally posted by Pauline@Aug 20 2004, 11:57 AM
Woo hoo, another over 35 person.:cheers:
Woo hoo, another man.:cheers:
Hiya Ian :wave: welcome to SSO! I had surgery last month and am recovering. Do hope you'll come and join us for a drink :-)
20th August 2004, 04:32 PM
WELCOME IAN! MY NAME IS LINDSAY!
20th August 2004, 05:04 PM
Hi! Welcome! Good Luck with everything!
20th August 2004, 05:23 PM
Welcome to SSO, Ian!
Yes, as you and everybody else have already stated, you came to your diagnosis the hard way. But congratulations for getting there. I am impressed by your persistence.
I'm curious to know what degree your curve is, and whether or not your surgeon is contemplating any treatment for it. At this point, just knowing, finally, what is wrong is probably a huge relief, but is there anything planned to hopefully relieve your pain?
Thanks for sharing, and welcome to SSO!
20th August 2004, 05:41 PM
Great to see you, thanks for your story. I've always said we need more older guys with names starting with "I".
Any idea what your curves are like? Check out the picture galleries and you'll see lots of xrays and stuff about us.
20th August 2004, 06:14 PM
Welcome Ian :wave:
My name is Leona and I'm 28. It's great to have another bloke around here. :D I hope you enjoy being part of our family
20th August 2004, 06:43 PM
welcome to the site Ian
20th August 2004, 07:00 PM
What a reception! Thanks for the welcome guys. I,m gonna have to have a long read through all these pages to get up to speed with you guys, coz obviously at the moment I don,t know all your stories and history,s. I would like to answer a few things that have been asked though. Ivan...apart from that fleeting look three years ago, Ive no idea what my spine looks like. The xrays were scaled down too. By the looks of it, I wouldn,t want it, oh, I have , haven't I. jfKimberly...The surgeon guy says Ive had it from birth and now I,m too old for any corrective surgery. What puzzles me is that I had a spine x ray in 1985 because of pain, and nobody said anything then. Maybe it developed later. As for degree. Well, maybe someone could tell me how the degree is measured. I havent been told and it was only looking through sites like this one that I even knew it was measured in degree's in the first place. Seeyou guys later. Hope the recovery goes well jonny. I,ll get up to speed with events and get on with reading this site..This is the first time Ive ever conversed with other people with this condition. It feels good, thanx, bye for now
20th August 2004, 07:16 PM
I am late as usual! But hey I live in the USA SO I have an excuse I was asleep :-D hehe anyways Welcome to SSO Ian! I am sorry you have gone through those rough times
20th August 2004, 08:25 PM
Originally posted by Kayla@Aug 20 2004, 06:16 PM
But hey I live in the USA SO I have an excuse I was asleep :-D hehe
I'm not so I guess I have no excuses. I have to work overday maybe that's a good one! :P Anyway my name is Lieve, I am 31 years old and live in Belgium.
Welcome to SSO Ian!
21st August 2004, 12:11 AM
Hey Ian, my name is Becky. Welcome to the site. I've been here for about a month and its great. Everybody is nice.
21st August 2004, 02:19 AM
Welcome, Ian! I'm fairly new, also. Glad to hear they finally found out what was going on. I know how awful it can be to have doctors not helping you! This site is awesome, and you'll find a lot of support! =)
21st August 2004, 09:20 AM
Welcome Ian. I have a daugher with scoliosis, rather than actually having it myself, so can't relate to a lot of the pain issues etc that a lot of these guys through. I hope you find loads of support and advice here - between us I think we pretty much cover most things.
22nd August 2004, 09:00 PM
Welcome Ian! It shouldn't surprise me anymore that some people go so long without being diagnosed, but it still surprises me. I'm glad you finally were diagnosed and I hope we can help answer any questions you have!
24th August 2004, 08:00 PM
were abouts in lancashire are you from ian? im from bolton!!
24th August 2004, 08:32 PM
Hi angel. I live in accrington with my wife karen and the two youngest of our three kids. nice to meet you.
24th August 2004, 08:37 PM
Hello Ian another Northern lad, i am from Bradford originaly, the white rose county. But i know live near Newcastle, i have been living in the North East for the past 14 years
*whistfully looks back on long summer days*
26th August 2004, 01:14 AM
Hi! Welcome to the site. I'm hopelessly late but I have an excuse too, I was on holidays till yesterday and I didn't have time to go through all the treads last night. Anyway, I hope you like it here, everyone is really nice. I've been a member since the site started (almost). I'm 15 btw and from Edmonton, Canada.
I hope they do something for your pain. I had A/P surgery 19 months ago. There's a thread about everyone's medical histories, if you're interested.
26th August 2004, 01:25 AM
What... Accrington? My father was from there!!
1st September 2004, 05:56 PM
:-o Dreadfully late :welcome:
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