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Heathlygal03
10th May 2007, 04:49 AM
Hi I'm new to this site and i'm so glad to have finally found something like this so i can talk to other people suffering from this. I am a 17 yr old girl and I have kyphosis. Its really ruining my life. I want to be a model and having a curve on my upper spine cannot give me the confidence to do so.

I had horriable posture in my childhood years and I am paying for it now. I feel so alone, all my friends have stright backs and I just can't get over the fact I'm not the same. I want to know what can be done about it. I don't want to feel like a crumb bum here and gush to all you guys my life story, but I am so down and I'm willing to do anything to have normal posture. I really really can't imagne going on with my entire life with this stupid hump on the back of my neck :(.

Any advice would be so helpful and I thank you so much for reading this.

Amazed Jean
10th May 2007, 07:01 AM
Hello Healthy,
Welcome to SSO. I'm sorry you are so down about your kyphosis. Please take heart, there are many things that can be done. Have you seen an orthopedic specialist or scoliosis doctor?
Your kyphosis is not likely to have been caused by poor posture. You need to see someone who will take xrays and/or MRI and should be able to tell you how bad any spinal curve or kyphosis is and work out steps to take for correction. There are lots of teens here who can speak from their experiences. I don't know where you are located but many of the SSOers are from Europe so be patient there is a huge time difference.
In the meantime, hang in there and don't blame yourself! You didn't do it. It just happens.

tonibunny
10th May 2007, 11:14 AM
Hi there, welcome to SSO :welcome2:

I'm so sorry to hear your situation. Please don't worry about "gushing" or anything, we're always happy to hear about people's lives as it helps us to understand and support them! :squeeze:

As Jean says, you really need to see an orthopaedic doctor who is specialised in spinal conditions, who can assess your curve. Let us know where in the world you are, and we'll help you find one :-) Kyphosis isn't caused by bad posture, so don't beat yourself up about it!

Toni xxx

Heathlygal03
10th May 2007, 02:42 PM
Oh thank you for reading this!! No I have not seen a doctor, I have an appt soon with my family doctor and hopefully I can find out what it really is. I think its kyphosis because of all the reseach I have been doing seems to lead me to think that is it. I'm in Canada actually. I live in Ontario.

I've been doing lots of reseach on kyphosis, and none has really helped me at all. It doesn't seem to me there is such a bright out look on it. I would really like some help. Sooo glad to have found a support forum like this!!

tonibunny
10th May 2007, 02:58 PM
Hiya :-)

If your family doctor says that it's kyphosis, then do make sure that he refers you on to a spinal specialist. You'll need x-rays and things to establish what's going on and how treatment can help you. Please don't worry! I know it's stressful and stuff, but we're always here to try to cheer you up. It's a very positive thing that you've taken the first step and arranged to see your doctor :D

We have quite a few members from Canada! I'm sure they'll pop by and say hello soon :D

Toni xxxx

Joy
10th May 2007, 07:30 PM
Hiya! I'm from Canada, but from Alberta. I live in Edmonton but please don't hold that against me. I don't have time to write a proper reply right now but Ill be back tomorrow.

GillyG
10th May 2007, 11:14 PM
Hiya :wave:

I'm really glad you found this site, it sounds like you could do with a bit of support right now. I don't have anything further to add to what the others have already said about getting referred to a specialist, but wanted to welcome you anyway. I have recently had surgery to correct and stabilise my scoliosis, which is a similar condition to kyphosis, as I'm sure you've already found out!

Please tell us a bit more about yourself. Like Toni says, it helps us to give you the support and information you need.

Take care.

Gilly xx :squeeze:

Heathlygal03
11th May 2007, 03:19 AM
Well I'm 17, in grade 12. And very unhappy due to this problem. The last time I went to my family doctor I was very nervous about saying anything but I got up the courage and I did and then after my appt. I said "Theres this slight bump at the base of my neck." and he said "Oh its just a deformity, theres nothing you can do about it. Were not all born perfect, excpet for Tyra Banks shes perfect." And I was floored. And so sad. He actually said that. So I gave up and tryed to face it but I couldn't. It really gets to me, I haven't woren my hair up in so long :(. My boyfriend of 2 years has never said anything about it and says I'm perfect but I feel otherwise.

This time when I go to my doctor I'm going to tell him stright out I think I have kyphosis I would like to know what can be done about it and could you refer me to a spine specialist?

Do you guys have any other questions that I should ask him?

It does cause pain some times when I stand for long periods of time. I am a sales associate at a clothing store and my entire shift is standing.

It really bugs me because I cannot make it dissapear no matter how I alter my posture my neck is still foreward. I am so desperate I'll do anything, maybe bracing can help me? Last result is surgery. But I will do it if thats what it takes.

I noticed this "hump" on my neck when I was in 6th grade and I never really did anything about it, my mom said I'd grow out of it? But that never happened. I am so glad to have found this site!!!

Amazed Jean
11th May 2007, 05:54 AM
You know it isn't "nothing" or you wouldn't be going crazy trying to figure it out. I wouldn't bother going back to the same doctor. I don't think he is hearing you. Of course you are worried. Of course you are not Tyra Banks. The man is at least part idiot. See if you can find another doctor to give you a referral if you need one or look for an orthopeadic practice or scoliosis specialist. They will be able to tell you more about your spine and what is going on with it.

Joy
11th May 2007, 01:14 PM
Hi,

Like I said, I'm from Edmonton. I'm Joy, I'm 18 and I had surgery for scoliosis 5 years ago.

I don't know where in Ontario you live, but I think you'd probably have to go to Toronto to see a surgeon. Make sure you get referred to someone with experience treating kyphosis and scoliosis. You can see a list of surgeons on the SickKids website. Just look at the orthopedic surgery department.

I don't know what might help you, but you're on the right track looking for a referral. Kyphosis isn't caused by bad posture, so please don't blame yourself.

If you're in a lot of pain you might want to talk to your doctor about that too. I found that advil worked really well for me, but be careful and talk to your doctor because you don't want to take too much.

I know that it's really hard sometimes to feel like you look different. I can be pretty self concious about my back sometimes. It gets better, I promise, but it takes time. :hug: :hug:

Heathlygal03
11th May 2007, 01:39 PM
I'm going to my family doctor again to see what he says. I would go to another doctor but its really hard getting in else where. I'm going to try and get a referal from him for a orthopedic or scoliosis specialist?

Heathlygal03
11th May 2007, 06:27 PM
I've been looking around on this site and maybe I don't have kyphosis. My actual back is not round, its where my neck starts there is a slight 'hump' (i hate that word). I can hold myself correctly and have good posture but its where my neck starts, and its pushing my head foreward. Maybe this is something different? It starts where my shoulders starts.
I'm not sure if this makes a difference but one collar bone is more prominent then the other?

tonibunny
11th May 2007, 07:45 PM
Hiya, it's certainly possible to have cervical kyphosis or scoliosis - ie curves in your neck rather than your back; it's just not as common as spinal curves in the thoracic or lumbar regions.

If you are unable to pull your head back or straighten your neck into a "normal" position because of this, then it certainly sounds like there is a structural curve there. I have one collar bone more prominent than the other too, and my top scoliosis curve is a high thoracic one, so maybe there is an element of rotation in your case too.

Obviously, the only way to find out what is going on for sure is to get checked out by a spinal specialist and have some x-rays done. So yes, please do get yourself referred! You need to find out what's going on, if only for your own peace of mind :-)

Heathlygal03
11th May 2007, 08:47 PM
If this is the case, what you said toni, can anything be done about it? Can surgery still help me? Or a neck brace?

tonibunny
11th May 2007, 09:16 PM
Yes, you can have surgery on your neck - though it's not usually advised because you'd lose the ability to bend the vertebrae that are fused, and you'd really miss that movement in your neck! :s Physio might help, and I seem to remember that bracing can help correct adults with kyphosis even though it doesn't work for adults with scoliosis. I'll find out more for you, don't lose hope :squeeze:

Heathlygal03
11th May 2007, 09:20 PM
Oh my gosh thank you so much. Surgery doesn't seem like the answer if I lose movement in my neck. I would be ever so willing to use a brace. Thanks for finding out more for me, I really appreciate it.

mark
11th May 2007, 11:19 PM
Hi

Welcome to SSO

Try not to feel so alone, i did for 20 odd years and i know how it get you down. Then i found these brilliant people. I thought i was the only one in the world with a twisted spine. I had a similar reaction from 2 general orthopedics and they both floored me too. The first was when i was 14 way back in the early 80s and the last a couple of years ago who said i wasn't bent double enough. I have learnt from the good people on this site to accept myself and how i look and those who stare now get stared right back at.

I hope you can find some answers to your questions. Get a referral to a specialist ortho have a good chat about the options available to you then sit back and think about your options. Take notes and write down your questions and above all don't be scared to ask him/her to explain something again if you don't understand anything that has been said

Once again welcome to SSO

Mark

Heathlygal03
11th June 2007, 02:45 PM
So I went to my doctors and this time he was a bit more understanding, i told him how it really affects my life and how sometimes the pain is really unbearable. So i'm going to get x rays done this week and he is making an appt with some kind of specialist, i'm not exactly sure. But anyway hopfully something can be done. I'm still not sure all my options having cervical kyphosis, and how i can treat it

RugbyLaura
11th June 2007, 03:55 PM
Hi "Healthy",
Glad to hear your doctor was a little more helpful & understanding today. Perhaps he was having an off day last time. No excuse I know, but even doctors are only human! Anyway, I'm pleased that something is being done - do let us know how the x-rays go. In the mean time I shall do some internet investigation - it gives me something to do & takes my mind off my worries!

Laura :-)

GillyG
11th June 2007, 06:49 PM
Hi again,

Pleased to hear your doctor is being a bit more supportive now. Maybe he was so dismissive before because you mentioned it as an aside at the end of your appointment, and he didn't realise how much it was bothering you? Anyway, at least now you're going to get some X-rays and can begin to find out your options.

Good luck and take care.

Gilly xx :squeeze:

Amazed Jean
11th June 2007, 06:57 PM
I'm glad you are getting to see a specialist. He should be able to answer your questions. SOOOO start a notebook and start writing in your questions for him. Remember that he is paid to help you. Read him the questions that concern you and try to make notes so you will be able to refer to them in the future. You should also ask for a copy or photo of your xrays. You will need them for the rest of your life to see where you started with treatment and you can post them here! Good Luck and keep us posted.

Little Ali
29th June 2007, 07:01 PM
Hi there,
I'm glad your doctor has listened to you and you're being referred to a specialist.

Just wanted to wish you good luck and we're all here for you if you have any questions or just need to vent :squeeze:

Heathlygal03
4th August 2007, 05:58 AM
Hey again, so I went and got my xrays a while ago, and I'm assumeing that my doctor has them so I am gunna call on tuesday of next week to make an appt. and Im hoping that something can be done. I'm almost 100% sure I have cervical kyphosis (althought its just my diagnosis). but if it do have it, is that it? I know nothing about cervical kyphosis, and I dont think much can be done, and that really scares me because I cant imagine living with this the rest of my life. it really makes me scared, and depressed. if you guys know anything about this please let me know, and i will definitly keep you updated. thanks for listening, im glad you people can understand what im going though :).

GillyG
4th August 2007, 11:33 AM
Try not to get too stressed about things (easy for me to say, I know), but it's very difficult to know what to advise you until you know what you're dealing with. Let us know what the doc says about your X-rays and we'll try to take it from there....

Good luck! :-)

Gilly xx

Heathlygal03
7th September 2007, 05:26 AM
hey again. thank you all for so much support and all your posts, :D. Well, as I said I got my xrays done, and im making physico appts soon. I havent seen my xrays yet tho, I have an appt with a specialist on dec 11th, it seems so far away! but i am very willing to wait. i will keep you guys updated for sure tho!!

Seeking_help
7th September 2007, 04:28 PM
Originally posted by Heathlygal03@Sep 7 2007, 03:26 AM
hey again. thank you all for so much support and all your posts, :D. Well, as I said I got my xrays done, and im making physico appts soon. I havent seen my xrays yet tho, I have an appt with a specialist on dec 11th, it seems so far away! but i am very willing to wait. i will keep you guys updated for sure tho!!
I know how the wait feels! I have to wait until January, so take some comfort that you'll see the specialist before I :P

Heathlygal03
15th November 2007, 10:45 PM
Hey all, I haven't been on here in a while, i've been really busy with school and work. But anyway I will give you an update.. i've started physico.. this is my 2nd week. its ok, i think its making some changes, i know its definitly loosening up some of my mucsles which feels nice, and i can do pilates more freely now. Other then that, the doctor said I have a reversal of bones in my cervical section, its suppose to go inward and mine doesnt' insted it goes out.. so i dont know if thats it, thats all i can do about it but i certinaly hope not.

I'm still waiting to see the ortho in december, so I have a few questions to ask.. i'm still really hoping there is something more I can do.. but just thought i'd update, hope you guys had a happy halloween.

Amazed Jean
17th November 2007, 07:37 PM
Thanks for the update. It sounds as if you are a great path to get you some relief. Try to stay positive and do what seems right to you. In the end you are the only one who knows your body and physios and doctors etc. can only give you suggestions, you have to agree to whatever they offer. Good Luck and do keep us posted.