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View Full Version : Alternative treatments that work????



julianemclean
4th May 2007, 01:03 AM
Hey,
I'm new and thought I'd try this forum, too. My 9 month old daughter has been diagnosed with congenital scoliosis and it's freaking me out that surgery seems to be the only option together with braces. What are your experiences with alternative treatments and therapies like Schroth, Bowen, CranioSacral, Spinal Touch, Chiropractic Care, etc.... all bogus or helpful? I'm not neccessarily looking for something to replace surgery, but to complement it and to feel I'm doing something now and not just waiting till the doctors decide her curve is bad enough to be treated surgically. Help anyone?

tonibunny
4th May 2007, 01:08 AM
Hiya,

Have replied in the Infantile forum, but it was a good idea to post here too, in case anyone misses it :-)

Toni xx

julianemclean
4th May 2007, 02:01 AM
Hey,
keep posting, I will check back later. Would like to know about individual experiences. Thanks!

crkcallie
4th May 2007, 06:33 AM
Hello and welcome to SSO. I have severe idiopathic scoliosis and mine is so bad that it is considered life threatening. I cannot have surgery, because of a lung disease, which prohibits me from having a full lung capacity. My only option is to do yoga stretches for the rest of my life and chiropractic care. I have had experience with both and I have to say that both are very beneficial. They have helped me a great deal in correcting my scoliosis.

tonibunny
4th May 2007, 10:57 AM
Callie, you have a 90 degree curve and don't use any form of apparatus to help you breathe. Despite what you have been told, your scoliosis is certainly not at the stage where it is "life threatening" yet! Remember, we have a lot of people on this site with much bigger curves than you, and they're fine. For instance, Sins has a double curve of 120 degrees and is busy raising a family and works full time with few problems. Amazed Jean is 56 and has curves of over 150 degrees, and although she needs help breathing, she's just fine too - she lives a full and happy life and is enjoying her grandchildren. So please, do stop worrying :-)

crkcallie
4th May 2007, 07:15 PM
I can't stop worrying Toni. The reason is I have a lung disease that severely cuts down my lung capacity. There have been a couple of times where I have been gasping for air, because my rib cage is crushing my heart and lungs. I understand that there are others with much worse curves than I have. By the way, my scoliosis IS at that life threatening stage.

Little Ali
4th May 2007, 09:27 PM
Hi there,

There are lots of people here who know alot obout bracing and ways of helping prevent scoliosis from progressing. I've only used alternative methods as a cure for pain. Massage and heat are very helpful and I've recently discovered cranial ostepathy, which was brilliant.

Hope this is of some help :squeeze:

titch
4th May 2007, 11:06 PM
Hi Callie,

If your lung capacity is so low as to be life threatening, rather than just doing yoga to try to counter the curve, you urgently need to find yourself a lung specialist and get prescriptions for inhalers to help your capacity and sleep studies done to work out your suitability for either BiPAP or CPAP, as well as having your sats monitored regularly to see if/when there's need for you to have supplemental oxygen. I'm sure Jean (Amazed) can offer you some really good advice on finding a good lung specialist as she's unfortunately had more than her share of problems. Shortgirl can also probably offer advice on it as she too has to use BiPAP as a result of her lung restriction.

I know the idea of all that degree of intervention isn't appealing, but with low lung capacity it's likely to make you feel so much better and would probably greatly help you to be able to exercise more, which has to be a good thing :-)

Mandy
5th May 2007, 10:13 AM
Callie,
In addition to getting a consultation with a good pulmonologist, a check up with a good spine surgeon would be a good idea as well. There are a few VERY well known spine surgeons within a little travel distance of Colorado. Dr. Michael LaGrone in Amarillo TX, Dr. Alexis Shelokov in Plano TX, and Drs Laurence Lenke and Keith Bridwell out of St. Louis MO are all highly recommended adult spine surgeons. Think about having another pair of eyes look at your x rays and make sure that you are doing all that you can be doing, maybe there is something that has not been considered yet. You shouldn't have to live in pain and hopefully you will be able to get this taken care of. Good luck.
Mandy