View Full Version : Juvenile Scoliosis

14th August 2004, 02:19 PM
I was diagnosed with scoliosis when I was 9 years old, so I belong in the juvenile category (3-10 yrs). I wonder if there’s anyone else who belongs into this category... :roll:

In 1992, my curves were 22 thoracic and 20 lumbar, and I was put in a Boston (TLSO) brace of this type a couple of months after the diagnosis.
I still remember exactly how the bracing room looked like. Other kids were having a plaster on their arm or leg, while I was hung horizontally in a big metal frame and got plaster around my whole torso. It was cold in the beginning but it got warmer as it stiffened up, and 30 minutes later the cast was sawed off. I got my first brace a couple of weeks later and I had to wear it 23 hours a day. X-rays were taken every 3 months and I visited a physiotherapist twice a week.
By 1998 unfortunately, my curves had progressed to 60 and 40 so I had to have surgery as soon as possible... The problem was that I only had my first period when I was 15 years old so I was still growing a lot! :-? We found a more specialised at the University hospital of Leuven and I had surgery there in the summer of 1999. By that time, despite the fact that I was still wearing a brace, my curves had progressed to 85 and 50! That's why I had to have the double surgery: first an anterior approach of the spine, the release of 5 discs and the resection of a few ribs, then (on the same day) the posterior fusion of 12 vertebraes. I had a bad experience with the chest tube but I was able to leave the hospital after 11 days. The recovery was tough, but I went back to school for full days exactly 2 months after the surgery.
My life with the Isola rods is going okay so far. I‘m rarely in pain, and I can do all activities/sports I like.

This is a picture of me (and my little brother) in France in the summer of 1993 (or 1994). It’s the first picture where my right rib hump is pretty visible (I hated my haircut..).
Because of the brace, I stayed very skinny and I only weighed 42 kilos on the day of my surgery. That’s not good for a 16 year old who was 173 cm tall. I've gained a few cm's and kilo's since then! ;-)

Well, that's my story, more or less...

15th August 2004, 08:23 PM
I know I was younger than 10y when I was diagnosed with scoliosis, but that's about all I know about it. I have no idea what my curves were back then, and my mom trew out the old xrays without telling me :roll:
I was fitted for a brace much like the one Liv showed, but they didn't hang me in a metal frame, I just stood up. They shouldn't have bothered making it, because I hardly remember wearing it, I'd do anything to take it off so you can imagine my curves getting worse.
I went to a masseur every week until I was 16 or 17 and I gave that up too. (I never considered it was working and again, didn't do my exercises, stupid stubborn me)
I never really showed any interest in my back untill february 2002 when I was forced to think about it. Because of a car crash, my back got a severe shock and it hurted pretty much every day since that night. My GP said it was time to see my specialist again (we did) and he referred me to a surgeon he knew (docter Michielsen). We went to see him and decided that I could wait untill my exams in june and have surgery right after them. My curves were 61 and 52 and are now 20 and gone.
It's only been 6 full weeks after surgery and I'm not in much pain anymore, but I guess you never know what'll happen in the future.

16th August 2004, 03:27 AM
when i was younger at school the nurse would say that my rib cage didnt look right but never said about my back and never did any thing ,. it wasnt untill this year when they found out i had it but the doctor thinks i have had it since i was born and that the nurse at my school should of done some thing when they saw my rib cage

16th August 2004, 06:30 PM
I was the one who noticed i had scoliosis. I suddenly started complaining about my back! That day in school we all were playing football with the guys. And it was rough lol but fun. It wasn't until i looked in the mirror at my house to see if maybe i had a bruise or something when i noticed a lump on it. I freaked out and the next day I found out for sure I had scoliosis.

20th August 2004, 08:37 PM
I guess I run into the juvenille since I was diagnosed at 9

Amazed Jean
8th October 2004, 09:09 PM
On our recent trip to The Grand Poohbah (Dr. Lonstein) in Minnesota he said my scoliosis would be classified as Juvenile Scoliosis even though I was 14 years old. He said that would be the case because I had not started my menstrual cycle or developed breasts until I was almost 17 years old. I suppose that means it wasn't adolescent onset scoliosis as we had been led to beleive. I don't think any of this information matters now.