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Tweety Pie
21st April 2007, 10:26 AM
We moved about 2 months ago and I signed up with the local physio.Her remarks about my back were hurtful :cry: She admitted she had no experience of scoliosis patients but seemed very confident so I had a few sessions with her.Always felt awkward though cos of what she said.

As a result of what I've read recently on here about getting treatment from people who know what they are doing ,I contacted the hospital physio department and was told I would need a consultant's referral.So I have booked to see a GP to get a referral to a local consultant ,in the hope he will refer me to the hospital physios who should have the specialist help I need.(I am under a consultant in another area, have not had surgery, have bad curves and pain).

I don't know how long all this will take but I know I'll never go back to that physio, not because she may not know what she is doing but, because of her hurtful remarks.

Has anyone any ideas on how to get physios who have experience of scolio?

BeckyH
21st April 2007, 03:45 PM
i would guess your best bet is to get referred to a physio who works at a specialist centre. i'm sorry, i don't know where you're from but i'm talking about hospitals such as QMC or Stanmore. i've never needed to seek out a physio before (the only reason i needed one was to sign off that i was fit to be discharged from hospital, so i was at Stanmore and provided with a good physio).

Amazed Jean
21st April 2007, 07:41 PM
Good for you! Do not go back to anyone who you don't feel 100% comfortable with! Tell your doctor what happened and just say you can't go back there. He might even send you to someone else by just calling in and asking. I have left many medical appointments because I wasn't comfortable and I always think if I don't watch out for me - no one else will! I hope you get this resolved soon good Luck!

GillyG
21st April 2007, 09:57 PM
Originally posted by Tweety Pie@Apr 21 2007, 09:26 AM

Has anyone any ideas on how to get physios who have experience of scolio?
Well, I guess I'm lucky since my surgeon has referred me to a specific guy at my local hospital who deals with spine problems and is very experienced with our condition, including patients with spinal fusions. I'm very relieved about this since when occupational health referred me at work I ended up with a really nice guy but who had no experience with scoliosis and unfortunately made things worse. :-o My first appointment is next Thursday, so I'll feed back when I have more info.

I think your best bet would be to see an orthopaedic spinal specialist in your new area and then get a physio referral from there since they will have the relevant experience. Good for you to not keep going to this other person who made you feel uncomfortable in some way, I think we're emotionally vulnerable enough without hurtful comments from professionals who should know better.

Good luck, let us know how you get on.

:squeeze:

Gilly xx

Little Ali
22nd April 2007, 05:27 PM
I go to a sports injury centre and I find them to be much moe clued up that gneral physios. They're fantastic. I'm probably not the best person to be asking about physios though cos I haven't had great experience!

Tweety Pie
22nd April 2007, 05:35 PM
Thank you all for your replies.I've been feeling so low recently with my back and having comments from people who care has really made me feel better.Thanks.

Seeing doctor on Tuesday and will let you know how I get on.The main hospital in my area is QMC.

Thanks again for making me feel better.

Lots of love from me

mark
22nd April 2007, 08:47 PM
be thinking about you tuesday, i hope it goes ok

Tweety Pie
23rd April 2007, 12:26 AM
thank you

Amazed Jean
23rd April 2007, 12:49 AM
Good Luck On Tuesday!

Tweety Pie
23rd April 2007, 11:36 AM
Thank you.It's so great to have your support.

Tweety Pie
23rd April 2007, 05:52 PM
Got confused about date of my appointment with GP and have in fact just returned from our new medical centre. GP had little knowledge of scoliosis but was sympathetic and very informative about pain management. Have been referred to a Mr Grevitt a spinal surgeon at the QMC in Nottingham who should be able to refer me to a specialist physio at QMC.I mentioned that I had good reports of Mr. Webb at the QMC but my GP was not able to find his details. Does anyone have any experience or knowledge of Mr.Grevitt or know whether Mr. Webb has retired?

Little Ali
24th April 2007, 12:24 PM
Hi,

Thought I'd post here rather than starting a new thread. Hope noone minds.

Has anyone got experience of osteopathy to treat symptoms of scoliosis? My physio has been the Mulligan Technique to treat my cervicogenic headaches and it really works. Unfortunately it's costing me a small fortune to get there and back. I've found an ostepath in my area and she's suggested Cranial Ostepathy would help. Anyone got any views on this?

Thanks.

Good luck with the physio Tweety Pie :squeeze:

titch
24th April 2007, 08:21 PM
Mr Webb has definitely not retired, but I don't know if he is actively taking on new patients at the moment. As far as I know, he's still director of the Centre for Spinal Studies and Surgery - I just got an appointment put back from next week to the end of May, and they said then that if I wanted a clinic he'd be at, it would have to go back further, so I know he's around.

That said, Mr Grevitt is also known on here as he did a fantastic job on John (zerodegrees), who had an extremely complex curve in that not only did he have a large kyphosis, but also a very short, sharp scoliosis curve within it - very unusual, but he got great correction :-)

Ali - I'm afraid I know nothing about Cranial Osteopathy. Is there any chance you could ask your physio? Explain the problem with the expense, and hope they understand?

Little Ali
25th April 2007, 03:40 PM
Originally posted by titch@Apr 24 2007, 07:21 PM
Ali - I'm afraid I know nothing about Cranial Osteopathy. Is there any chance you could ask your physio? Explain the problem with the expense, and hope they understand?
Yeah I'm going to ask him tomorrow. He is very understanding about it and I know he'll give me his honest, proffesional opinion. I'll let you know how I get on.

Tweety Pie
26th April 2007, 12:25 PM
Titch ---Thanks for the update Titch and congrats on the birth of your son.
It's good to know that Mr Grevitt achieved such an amazing result in relation to John/Zerodegrees' surgery.It's great to go in feeling confident about the person you are consulting.

Little Ali ---I have had some craniosacral physio but not craniosacral osteopathy in the past which I found very relaxing and energising.The physio I had back then was an amazing lady and I had craniosacral sessions interspersed with traditional physio.She understood scoliosis very well and never made me feel uncomfortable in any way.In fact she introduced me to new ideas about pain --how to be more positive etc.Getting the right practitioner seems to be the key.Good luck.

Am awaiting a call from Mr Grevitt's secretary today and hopefully will see him soon.

Little Ali
26th April 2007, 07:18 PM
Thanks Tweety Pie!

I went to see my usual physio today and he was very supportive and understanding. He said that in his opinion, a good Osteopath is definately better than a bad physio (which he isn't...he's an excellent physio) He said that the best thing to do would be to go and have an appointent with the osteopath and see how I get on and if I want, he can always do a handover to make sure that I get the right treatment. Also, I could always do a bit of both cos my physio wants to do some muscle strengthening work seen as my back muscles did pretty much nothing before surgery and now they work.

I'm gonna ring the osteo this week and go and see them. I'll let you know how I get on.

Thanks for your advice!

Tweety Pie
26th April 2007, 11:17 PM
Looking forward very much to hearing how you get on with the osteopath.