View Full Version : Let's hear it for natasha
11th August 2004, 04:52 PM
Let's send a big welcome to our old pal Natasha who finally found us!
She's a few weeks post op having done well after surgery for a 150 deg curve.
However she in need of some cheering up as her doctor has refused permission for her to go on her holiday...... :woe: after everything had been booked.here's a big sso :welcome: and a :squeeze:
11th August 2004, 05:08 PM
Welcome, Natasha. :clap:
I'd love to hear how your surgery went!
11th August 2004, 05:18 PM
:welcome: Sorry to hear that your holiday was cancelled though - that really sucks :(
11th August 2004, 05:23 PM
Welcome Natasha! I hope you aren't feeling too sore after your op. Sorry about your holiday.....we'll try to cheer you up here :hug:
11th August 2004, 05:24 PM
Welcome Natasha :wave: hope you have a great time here! :squeeze:
11th August 2004, 05:45 PM
:welcome2: Sorry about your holiday, it must really suck. But try not to think about that too much, and enjoy it over here
11th August 2004, 06:42 PM
Welcome!! I hope that you are slowly getting back to you normal activities... WOW 150 degree curve! I would love to hear details about your surgery!
11th August 2004, 07:05 PM
Welcome to SSO, Natasha! I'm so sorry about the holiday, but I'm rather impressed that you were so eager to go after just a few weeks since surgery.
150°? How did your surgery go? How old are you? When were you diagnosed? Did it impact your pulmonary function?
So many questions... Sorry. I'll wait for you to post your story.
11th August 2004, 07:09 PM
Welcome!!! :D :clap: You'll feel better once you get to know us ;-) :squeeze:
11th August 2004, 07:36 PM
Hey! Welcome to SSO!!! Wow 150 deg curve? what is it after the surgery?
11th August 2004, 07:46 PM
Heya Natasha! Don't be scared.. We don't bite!!!
I hope you feel better soon! :hug:
11th August 2004, 08:10 PM
hi Natasha welcome to sso hope your feeling better soon sorry about your holiday we will try and cheer you up
11th August 2004, 08:11 PM
Welcome Natasha!! :welcome:
Sorry to hear about your holiday but I hope you feeling better soon. :squeeze:
11th August 2004, 09:13 PM
Hi Natasha. Welcome! We had to cancel our holiday too as our consultant wouldn't let us go, so I can fully sympathise. Look forward to reading your story. Hope you've got your feet up!
You'll love it here - everyone is SOOOOO nice.
11th August 2004, 09:16 PM
Hello Natasha wishing you have a speedy recovery so you can have a nice holiday sooner rather later
And welcome to the site
11th August 2004, 11:41 PM
Hi Natasha :welcome: I'm sorry you're missing out on the holiday but maybe we can cheer you up :squeeze: You're gonna love this place :D
12th August 2004, 01:10 AM
Hello Natasha, please tell us all about yourself when you feel more comfortable with the site and its attributes ;-) We are a friendly bunch and would love to know more about you and your recent surgery. Most of us have been (or about to go) through surgery, so we do know how you generally feel. Welcome to SSO! :welcome2:
13th August 2004, 05:49 AM
Hey Natasha!!!! :welcome: :welcome2:
Sorry about your holiday! I'm one of those who's about to have surgery. Can't wait to hear your story! :-)
13th August 2004, 04:38 PM
Wow. I'd love to hear about the results on a recent operation on a 100+ curve. Welcome Natasha. Here you'll find many shoulders to rest tour head on in times of need.
*Hugs* Feel better.
13th August 2004, 04:55 PM
:welcome: Hope to read how everythings going soon :-)
14th August 2004, 03:47 PM
Wow :) Id like 2 say thankyou so so much 4 all ur replies just 4 me i wasent expecting it! :-)
I'm 2 months post op but can still remember surgery vividly :S
If I start from the beginning as some of u asked questions and i can answer them if i tell it this way :)
Im 17 years old and was first diagonosed with scolosis when i was 5 when i had a doctors checkup and the nurse noticed I had 1 shoulder a bit higher than the other and got referred 2 a specialist in oxford nuffield orthapeadic so firstly i think it as around the 20 degree stage so it was just being checked up every about 6 months i think it was about a 1.5hour travel each time not fun when ur young! That went on until i was about 10 it kept getting worse and was then about 40 sumthin degrres and got a brace made for me i wore that all the time except p.e ,bath and bed i was in year 6 i only wore it 4 about a year because it wasent doing nothing but i had no problems with it every1 loved it at school they were like cool tasha wears armour and every1 loved knocking on it hehe :-)
after that they said it was nearing 50degrees they recommended surgery my mum didnt want me 2 have it all we heard was really bad storeis of it and all the thing that COULD happan and they never said I HAD to have it (i think if we knew what it would of got like we would of) so my parents left it up to me , at 11 years old i just said no i dont want it , i could do everything , nothing looked out of ordinary and i think my parents thought that too, nothings wrong so why have this such major surgery.
Nothing really happaned until I had a growth spurt at about age 13 then my shoulder blade started being more noticeable (right hand side) but not much so i wasent to worried then from there it just got worse and worse by 14 i couldent tight tops because i just thought it looked horrible but i still wasent to bothered and as time went on i started becmoing more breathless mum noticed it and i did start 2 get a lil back ache sumtimes but ive never had pain realllly bad just if i walked all round town for say 2 hours , I was 15 when it started affecting me really bad everyone was wearing tight tops and i always went round with sumthin over the top , I hated it people would ask what it was i told them and i knew every1 felt sorry 4 me also like my hips were sooo out of line , buying a leavers ball dress left me really upset , I knew I wanted to have the operation even tho i as soo scared of it we thought it had got so bad it wouldent really make a difference now and we all just wished we hadent left it.
We got a appointment which takes bout 3 weeks and had a chat with the surgeon he said I should have it to make it not go no worse , I thought i dont think it could go no worse than this! I asked how many degrees it was but he said he didnt know for sure becasue it was off the scale :S
so now i was on the waiting list ....i was on there for a bout 1 year and 2 months then got a date for the pre admission clinic where i had a blood test and ecg heart monitering thing , lung capicity, erm signing the form to say i want it done and all the risks involved i had 2 cring when i saw my xray it said 155 degrees on it and it didnt look like a spine it was prob the most far from a straight line ive ever seen! :cry:
the pre admission clinic takes about 5 hours because theres alot to do routine things.
I then had a letter in about 2 weeks to say when the surgery was it was 2 months ahead on the 11th June the physiotherapist told me its a major op but to not worry , I did worry but really wanted to get it over.
I went in the day before and stayed the night at john radcliffe thats where my surgery was done mum came early in the morning before I was due in , I wasent allowed anything 2 eat and was given "calming tablets" and told if i could have a shower and put the gown on then after that the men came in 2 take my bed 2 thearte i said bye to mum and went down all i can remember from then is going in2 a room with about 4 people in i think it was the room u go in before the anethesists room i cant even remember being injected 2 be put asleep at all , it was a 7 hour operation i was told by the doctor 1 hour of that is just to get u in postition for the operation and everything attatched to you.
I dont remember recovery at all mum has told me tho she said I was crying for her because i couldent see because my face was all bruised where i had 2 lie on my face , mum said i just kept asking about how is everyone and has everyone been told im ok. I vaguely remember going bak to the ward because i didnt need intensive care and talking to mum all night long! that was when i felt ok but the next day i got really ill my blood pressure was really low (every 4 hours id have tempreture, blood pressure) i kept on and on being sick , and i couldent breathe it was like i had flem but it was stuck and i really felt like i couldent breathe so this bit reallly hurt i had to have a tube put right up my nose and down my throat it killed! they said because my bowels had stopped working my food was just coming back up and if i didnt have this tube id lose weight rapidly so all this gunk came up from my stomach i dunno what it was and went in2 some huge bowl by my bed ...yeck
I cant really remember being in john radcliffe but i know it was a bad time then after about 4 days I got tranferred by ambulance to nuffield to a room by myself with a tv , i was still being sick loads and everytime i had 2 get cleaned up and u realy dont feel like moving and rolling , i really didnt like my nurses they were so horrible they treated me like i had a broken arm not a huge spinal operation , I had a oxygen tank delievered everyday coz i still couldent breathe that well there was times in the night i felt so bad and honestly thought i wasent goin to make it i was in so much pain and after a week of being in pain they realised why i was because they hadent gave me my pain pump! i was really annoyed i was in agony and when i got that pump it was like the best thing i could of ever got in my life although it made me even more sick it took all the pain away i could judt press it every 5 mins. I had physio to get me to learn how to walk again the 1st day i only sat up , the second day was a bit more then slowly i could walk down the corridor , the morphine pumped stopped working for a day so it was really painful.
after a week there i got moved to the ward where gradually i got better and just took painkillers although somtimes where so bad id have injections in my thigh ouch! and my bum! owwww it really hurt but at the time u just want 2 feel better I think I had a bad experience of hospital to be honest no1 really knew what they were doing with me and every1 was confused thats why i think i got so ill as i did there were alot of complications. But the best bit was the difference made 2 my back was incredible my hips are almost toally straight and my rib hump much much less ,yes its still noticeable but i wasent expecting it to be totally gone because it was to bad but im so glad of the outcome :D and in the end thats all that matters but im still glad its over!
I did get an infection and have a nurse come out every other day to change the dressing on my back so it will heal i think its where the chest drain was.
I have looked at my scars 1 on the back and 1 on the side and they r huge but they will fade which is good.
What i will say is to every1 out there is to NEVER just leave scoliosis coz i did and it got wors and worse and no matter what u cant stop it. so get it stopped as soon as u can coz u will regret it , u will get through it!
if anyone wants to ask any questions feel free id love to help :)
and i grew 3 inches!!
14th August 2004, 04:35 PM
You've really been through a war! :-( How do you feel now, 2 months post-op? Are you getting a little bit of flexibility back?
I had the double surgery (anterior+posterior) on one day too. I was sick and I couldn't eat either. I was 11 days in the hospital! How long did you had to stay?
Do you know how much your curves are now? You grew a lot, which is a good sign! :-)
14th August 2004, 07:41 PM
Hi liv :)
I feel much better now thnks , i only take some painkillers before i go to bed and if i get a backache but im much better now
I was in hospital 16 days and couldent wait to go home!
I dont know what my curves are now but im sure il find out when i vist in sep
14th August 2004, 09:34 PM
That's an amazing story natasha,
It sounds like an incredible ordeal and just reading your account of what you went through sent shivers down my spine.....
It's disappointing that the nursing care was lacking a bit but it sounds like your surgeon did a wonderful job.We were wondering how you were doing and remember your story from s life.It's so great to see you're doing so well.How are the lungs now?Hopefully the wheezing is improved and your strength is back.Why on earth did your doctor say you couldn't take a holiday?It wasn't as though your were going to climb to base camp at mount Everest............
14th August 2004, 10:08 PM
Thank you for sharing your story, Natasha. I'm curious if you had pictures of your back taken before your surgery and if you could take a picture now, for comparison. My back is in a terrible state, and I'm wondering what kind of improvement I can hope for.
Oh! And you said you were getting breathless by the time you were 15. Did you have pulmonary function tests? Do you know what your lung capacity was, and whether it will improve as you recover?
Thanks, again, Natasha. You had an ordeal in the hospital, and you seem to have come through despite all the problems. Congratulations on your correction... you sound very pleased with it, and I'm happy for you.
15th August 2004, 08:43 AM
Wow, Natasha, what an amazing story! I'm new to the site as well, but these people seem to be pretty great. ;-) Hahhaaa....No really, it's a great help. I'm glad to hear that your recovery is going well. Good luck as you continue to heal!
15th August 2004, 02:42 PM
Natasha - I am another John Radcliffe/Nuffiled Orthopaedic scoliosis patient. I had my appointments and the majority of my recovery at the Nuffield Orthopaedic, but the surgery itself at the John Radcliffe. Did you have James Wilson McDonald too? Th experience wasn't very nice but I trusted the doctor and I'm glad to see someone else who has scoliosis follow-ups at the Nuffield Orthopaedic centre!
15th August 2004, 09:06 PM
sins - hi!I know i really wanted to go it was really annoying i couldent go on hol but i guess its better 2 be safe than sorry. Yeah i think my lungs have improved i dont get breathless much now but i havent had a lung funtion yet so il see then if its improved alot.
jfkimberly - hiya!unfortunately no i dont have any pictures but when i go back at the end of sep i will try get my xrays before and after and put them up on the gallery, I dont know what my lung capicity was before but i do know it was below average i think quite abit i havent had one after yet so when i do i see if its made a difference.
mel- hey!thanks :) welcome 2 the site 2! :)
Floral- Hiya! No i didnt have him i had Mr Jeremy Fairbank , yeah im not keen on havein the visits at nuffield i just dunno i dont like the place!
16th August 2004, 03:10 PM
Wow, what an experience you went through Natasha. :-o
I'm delighted that they have the means of dealing with a 150 degree curve properly these days. I guess it's to be expected that your body would have gone through such turmoil after such a huge "stretch". :-D :-D
I hope you can get away soon on your hols. I had a spinal fusion 25 years ago when I was 13 and live a normal life but had some acute respiratory problems after giving birth nearly five years ago (All avoidable in retrospect). I wasn't allowed fly from Dublin to a wedding in London three months later as my respiratory consultant was afraid that my breathing would be compromised in the airplane (cabin pressure). Two months later, he decided that I was well enough to f;y to italy (a much longer flight). I didn't feel much different, I think they just like to be careful.
22nd September 2004, 06:32 PM
Bumping this topic up for Tigger and Chrissy :bump:
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