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1st December 2006, 07:21 PM
I have just joined this forum because I am feeling extremely lost and on overload. My 14 year old daughter was diagnosed with Scheurmans Kyphosis in June. She is a candidate for surgery because of the degree of her curve but becuase of her being overwieght they are holding off on doing surgery till she loses weight. They have tried to brace her but again becuase of her weight issue it has been difficult. Her younger 12 year old sister was just this past month diagnosed with fairly severe scoliosis as well as SCFE (Slipped capital femoral epiphasis) of the hip. She had emergency surgery and had a screw put in her hip for the SCFE. I have an appt for her about her scoliosis on Dec 13 and it was suggested that she is a candidate for stapling. I live in Maryland and am seeing the doctors at Shriners hospital in Philadelphia, PA about a 3 hour drive away. I guess I am just feeling so overwhelmed with everthing. I am a single mother. I work full time and get no support from their father either financial, physical or otherwise. There is just so much information overload about what to do, how to handle things, etc. I joined this forum to see how others are handling all this.
1st December 2006, 08:27 PM
Hi there! Sorry for the circumstances that have brought you hear but nevertheless :welcome2:
Everyone here is very friendly and helpful and joining this forum has been a great source of information, support and comfort to me. There is always someone here to answer any questions you have and give advice on how to cope with different situations. In my experience, everyone has also been extremely helpful in preparing me for consultations in giving advice on what to ask and look out for.
I really hope we can help you out.
All the best :squeeze:
2nd December 2006, 06:18 PM
Hello and welcome to SSO.
I am sorry to hear about the circumstances that have brought you here. I can second everything that Ali has said, everyone here has experience and together it is really useful in helping you out when you feel a little lost. Everyone here has been great in helping me out when things have been a little rubbish!
I hope we can help you out. :squeeze:
2nd December 2006, 06:29 PM
Hi welcome to SSO
I also suffer from Scheuermann's and have never had surgery for it. I was diagnosed back in the bad old days when they thought any sort of kyphosis surgery was not worth doing.
I will link you to a few threads in the kyphosis forums where there is a wealth of info and support. We have a good number of members now who have had surgery to correct there Sheuermann's so try not to freel too alone. We will support and guide you through it all
Heres the links
The above is just a flavor of some of the topics in the forum
i hope they are of some use
once again try not to feel too alone we are all here to support you through these difficult times
2nd December 2006, 07:13 PM
Oh dear, youre going through the mill aren't you. I dont know what to suggest exept... KEEP YOUR CHIN HELD HIGH AND YOU'LL GET THROUGH THIS.
My thought are with yoy and your daughters. Take care and keep us updated!
2nd December 2006, 08:36 PM
Hi Cathi and welcome.
When you feel stressed and under pressure, feel free to log on and vent your frustrations.
Being a parent of a child with scoliosis is no picnic and can often be overwhelming.I have two kids without scoliosis and that's a difficult enough job.
Firstly, you are in a superb hospital.It has a worldwide reputation for excellence and I'm sure that your children will be cared for by experts.
Can the hospital refer your older daughter to a dietician or put you in touch with someone who can give good advice about healthy eating.
In the meantine, you've found a place with us and we'll do all we can to support you through this challenging situation.
2nd December 2006, 09:04 PM
Welcome to SSO! I'm glad that you have joined.
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