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View Full Version : Yes....another appointment in Montreal


Sealy
25th September 2006, 03:59 PM
Yes Ladies and Gents,

We have our appointment next week in Montreal and I'm beginning to get the habitual "sinking in my stomach" feeling as though I'm falling into a bottomless pit and I have absolutely no control of events. :shock: Her back looks great, but x-rays always reveal things we may not see with the naked eye. I'm hopeful it will be good news. Deirdre as usual is very excited about the train ride and has already started packing. We have a portable dvd and various Dr. Suess books lined up. Sometimes we're lucky and get seating in the first class compartment which is soooooo luxurious - curtains on the windows and everyone looks soooooo rich. LOL !!! It's such a civilized way to travel *sips her cup of tea*

andrea
29th September 2006, 06:43 PM
Good luck with the appointment Sealy. I'm sure things will go great. I dread travelling with Erin as she fidgets and gets bored easily, but Deirdre's a little older so hopefully is more manageable. Let us know how it goes.

titch
29th September 2006, 06:51 PM
Oh heck, I meant to reply to this already - I'll have fingers crossed and be thinking of you, hopefully the results are continuing to be as good as they have been :squeeze:

newgirl
29th September 2006, 10:14 PM
Best of luck with the trip Sealy and I hope the results are positive.
I know you worry about the x-rays but the fact that you think her back looks good is a really good sign
let us know how you get on.
Nicola

Sealy
29th September 2006, 10:31 PM
I know you're all expecting good news....but you know it gets scary when the curve is at "1" degree and there is really not much room for improvement :-o If it goes the other way *even slightly* it's cause for concern. I know you're all thinking "ya ya I wish I had your problems" :D

Andrea,

I LOVE Erin's new photo !! She is so beautiful!

Sealy
10th October 2006, 03:07 PM
As some of you know, we traveled to Montreal on Thursday. The appointment was pretty much uneventful, Deirdre' curve is stable at "1" degree!!!!!! O.k. I guess there is not much point reading any further since that's the big news LOL!! Well it is quite a relief to be holding at 1 degree 1 year post serial casting. If something bad were to happen I'm sure it would have happened by now and I guess I could finally breathe a sigh of relief that things are *finally* under control ?!!!. Dr. Rivard and Dr. Coillard were wonderful as usual and I should add that their assistant is such a sweetie pie.



That's basically it !!

tonibunny
10th October 2006, 04:54 PM
WOW that is fantastic news Sealy!!! Congratulations! How often does Deirdre have to have check ups from now on?

Sealy
10th October 2006, 05:49 PM
Thanks Toni! We go back in March of 2007 and I'm planning to schedule it during March Break so that we can make a little vacation of it.

I have a question for the experts here.... does anyone know what a level of 4.5 on the scoliometer means ???? I know that the rib hump is an indicator of rotation as well and I was just wondering what 4.5 means in the grand scheme of things. :???:

titch
10th October 2006, 06:26 PM
'Fraid I've no idea on scoliometer readings. Great news on the fact it's all staying straight though! Making a vacation of it sounds like a really good ide - if you have to go that far, why not make the best of it :D

Sealy
10th October 2006, 06:42 PM
It is nice that everything is holding :-D Here's what I found on scoliometers:


http://www.scoliosis.org/store/scoliometer.php

titch
10th October 2006, 06:49 PM
Looking at that image, I can't imagine that 4.5 is very much, whatever it actually is, if you see what I mean :P I was actually fairly sure that they can show apparent curve where none exists, but wasn't sure enough to say that without checking, so I'm glad you found that link :D

Thaleias spirit
10th October 2006, 09:40 PM
Sealy .. what can I say but wow .. that is fantastic news ...
I can only imagine how relieved you feel !!!

They can actually measure 1 degree? Is it really worth the effort?
who cares as long as it stays like that though!!!

*lots of hugs*

chele

Sealy
11th October 2006, 01:34 AM
Thanks Chele! Titch, I just did a search on scoliometers and I read that a level of 5 is usually associated with a 20 degree curve. The scoliometer reading was taken without the brace on so I imagine that it would be the equivalent of an out of brace x-ray ???? So 4.5 is pretty close to 5.....however she did start off with a 60 degree curve so everything is relative. I read somewhere that the rib hump is one of the last things to resolve. :woe:

newgirl
11th October 2006, 09:37 PM
Sealy,
That is great, it is such a result, well done you and Deirdre.

And whilst I know that 4.5 is very close to 5, the important thing is that it is not 5
:hammer:
Nicola

Sealy
12th October 2006, 02:50 PM
I wish I knew what a 4 represents :-D

gerbo
12th October 2006, 03:57 PM
I think in this case "what you see is what you got" applies. If you cannot see it in normal life; it is of no significance, if you can see it (which i doubt) it is only a slight assymmetry and only of cosmetic relevance. In any case i think it must be quite difficult to get a reliable measurement in a 5 year old, so next time it might be totally different

I honestly, honestly think there is noreason to worry here.

Sealy
12th October 2006, 04:19 PM
O.k..... NO more updates for you Gerbo :soapbox: I need support here!!!!

gerbo
12th October 2006, 04:29 PM
are you serious????

Sealy
12th October 2006, 04:31 PM
Noooooo. I'm laughing my butt off :lol:

gerbo
12th October 2006, 04:34 PM
still not sure whether you are trying to tell me something....... (which you can ofcourse)

Sealy
12th October 2006, 05:22 PM
Say what ????! :idiot: :-D

gerbo
12th October 2006, 06:18 PM
what question are we trying to answer here??? :hunny: :hunny:

Sealy
12th October 2006, 06:21 PM
I'm totally lost :blah:

Amazed Jean
13th October 2006, 06:47 PM
Others of us are Lost to the new season of Lost on television. (It's starting to suck already.) BUT and HOWEVER - screw the scolimeter - know that you are ever watchful excellant Mom and have control AND the results so far are past perfect! Congraulations!!

Sealy
13th October 2006, 08:01 PM
Thanks Jean !!!! It means a lot to get your vote of confidence. :squeeze:

Joy
20th October 2006, 02:12 PM
I think I read that with bracing and casting, the rib hump gets better more slowly then the curves.....

I am sure everything will work out fine, but I total understand why you are worried!

mark
14th November 2006, 10:55 PM
Hi sealy i can't believe i missed this post so sorry i have'nt replied before now. i'm really pleased for you, you seem to be winning the battle and it's great to read about non surgical interventions working. I totaly agree with jeans sentiments and your exchanges with gerbo had me falling of my seat with laughter.

Mandy
15th November 2006, 03:20 AM
Ok, might be some random info here but I know a bit about the "history" of the scoliometer. It was developed (in part) by a surgeon at Loma Linda University in California named William Bunnell (he is a Spinal Surgeon, Orthopedist). It was developed to aid in the school screenings for scoliosis and help to decrease the number of referrals sent to specialists for x rays and treatment that were only mild cases. Like has already been mentioned a 5 is about 20* (and he believes does not need referral in most cases) and a 7 would need referral for treatment (further observation, bracing, etc.)
This (IMO) is a great invention. Remember though that there can be false readings (cases where people dont have scoli but do have a reading on the scoliometer).
I have seen Dr. Bunnell before and did not stay under his care, but I am sure that he is a great surgeon (I just did not like him personally).
Glad to hear your little one is doing so well. 1* is a great correction and would be something to celebrate holding for a year. Lets hope that her roation goes down below a 4.5.
Mandy

Sealy
15th November 2006, 07:40 PM
This (IMO) is a great invention. Remember though that there can be false readings (cases where people dont have scoli but do have a reading on the scoliometer).

I find this fascinating! It makes me wonder whether the ribs have a role in the development of scoliosis so I'm naturally drawn to articles that deal with this.

Glad to hear your little one is doing so well. 1* is a great correction and would be something to celebrate holding for a year. Lets hope that her roation goes down below a 4.5.


Thanks Mandy!


Mark,

I absolutely *love* your rock star avatars 8)