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Little~shedevil~dee
26th July 2004, 02:54 PM
i have been thinking about this for a long time . i realy want to change doctors but how do i go about it do i find a scoliosis doctor then ask my gp if i can change ?
i realy dont know how to go about this
i have tryed looking on the internet to find a scoliosis doctor near me but no luck
i could do with any advice plz help me

tonibunny
26th July 2004, 05:22 PM
Hi Dee,

Go back to your GP. Explain that you are unhappy with the scoliosis specialist that you currently have, because they have lost your x-rays and have not given you the information that you need regarding your condition. Tell your GP that this has caused you unnecessary worry and stress, and that you would like to change to another scoliosis specialist. If they say that this is not possible, ask your GP to chase up the information for you asap - they have a duty to get this information to you.

Good luck!
Toni xx

Little~shedevil~dee
26th July 2004, 08:08 PM
Thanks toni that has help me a lot
i have never been good at think of what to say and you have helped me big time so thanks hun
i will let you know how its goes i will try to see my gp tomorrow

Blair
26th July 2004, 08:41 PM
I ran into a problem finding a doctor too....

The doc who did my surgery actually isn't really a scoliosis specialist exactly...

I started out with a sports medecine doc in the beginning, which did nothing for me. But they knew of no specialists. And all of the scoliosis specialists I found online in my area would not even look at an adult patient. So what I ended up doing was finding a specialist, travelling to them for an appointment and he was able to refer me to a doc in my area.

Little~shedevil~dee
26th July 2004, 09:21 PM
i think my doctor dr guirguis is not scoliosis specialist , well it says pain management on the letter if she is a scoliosis specialist you would know way she has treated me lol

tonibunny
27th July 2004, 01:27 AM
Have you actually been seen by a scoliosis specialist, or at least a doctor at an orthopaedic clinic? If you have been told that you have scoliosis, you should insist on being referred to a proper specialist by your GP - not just a pain management clinic, which is secondary to your real problem. Go back to your GP and kick their ass into gear Dee :D You must have the treatment you deserve!!

Little~shedevil~dee
27th July 2004, 01:31 AM
no i havent seen any of them only the pain management
thanks toni for your advice i am so greatfull to you hun,
i cant wait untill morning now i want to kick some ass lol :-D let me at them , let me at them lol :evil: i better not go to over the top just incase i do kick some real ass lol

Marti
27th July 2004, 02:45 AM
Good luck Dee! It's really such a shame to hear about how bad your medical treatment has been. they should be incredibly ashamed about the way you're being treated (or should I say not treated).

titch
27th July 2004, 12:58 PM
Hi Dee, given your location in Hemel, although they may not be too easy to get to, probably your best bet is to ask for a referral to Stanmore. It's a pretty fair bet that your local GP conglomerate has a contract with Stanmore for these things. You'll get to see a proper specialist there, and get a proper diagnosis.

Hope it goes well! :hug:

andrea
27th July 2004, 01:32 PM
Hi Dee

Best of luck getting your specialist changed. We are at Stanmore and we were seen within days of our referral being read by the specialist - had xrays and were told of treatment and curves immediately. I've got my fingers crossed that you get a good referral and can get the treatment and pain relief you need quickly.

Good luck
Andrea

Little~shedevil~dee
27th July 2004, 01:41 PM
Originally posted by titch@Jul 27 2004, 10:58 AM
Hi Dee, given your location in Hemel, although they may not be too easy to get to, probably your best bet is to ask for a referral to Stanmore. It's a pretty fair bet that your local GP conglomerate has a contract with Stanmore for these things. You'll get to see a proper specialist there, and get a proper diagnosis.

Hope it goes well! :hug:
thanks guys i think i will ask about stanmore , my mum think i went there over 5 years ago about my back but the doctor just said about having a breast redcution maybe now they know whats wrong i might have more luck

Jonny
27th July 2004, 01:46 PM
Stanmore's a great place. Good luck Dee.

Little~shedevil~dee
27th July 2004, 01:53 PM
thanks jonny , yeah it sounds like like a great one from what i have heard from you , its in london isnt it?

Jonny
27th July 2004, 02:31 PM
Sort of London, ish um, Middlesex. Come off M1 J4, keep going till the roundabout, turn right, next roundabout turn right, up the hill, and past a mini roundabout or two, the hospital's on the right. I call it London I guess.

Little~shedevil~dee
27th July 2004, 02:40 PM
i dont mind it being a bit far as i am lucky and i get my money back when i have hospital appointment lol

Jonny
27th July 2004, 08:04 PM
and from Hemel it's only 4 junctions down the motorway anyway :-)

Carly
27th July 2004, 11:09 PM
What exactly is Stanmore... do they only deal with scoliosis?

Jonny
27th July 2004, 11:24 PM
www.rnoh.nhs.uk (http://www.rnoh.nhs.uk) it's the main wing of the Royal National Orthopaedic Hospital. It's a huge complex just outside London and they deal with all ages and all kinds of orthopaedic things, although a good half of the Adolescent Unit patients are there for scoliosis surgery. They also have a little tiny outlet in Bolsover Street in Central London but that's just outpatients.

Carly
28th July 2004, 04:34 AM
I dont think we have just an orthapedic hospital here.... Is it just for kids?

Jonny
28th July 2004, 02:48 PM
No, it's primarily an adult hospital, but they have the busy Adolescent Unit and Coxen (children's) ward and they deal with many congenital problems, especially scoliosis. There are quite a few specialist orthopaedic hospitals in the UK, but all I can think of right now are Stanmore and Nuffield Orthopaedic.

titch
28th July 2004, 03:08 PM
Hartshill Orthopaedic, who designed the Hartshill Rectangle as a variant of Luque rods is another - that one is somewhere up northish, I'd need to look up where.

Little~shedevil~dee
28th July 2004, 08:49 PM
thanks jonny for the link thats been a great help , also i got some good news i got a date to see my gp tomrrow i will let you know how it goes

Little~shedevil~dee
29th July 2004, 02:43 PM
hi i have seen my gp but hes told me to go and see my old gp the one i first went to about my back over 5 years ago now and i have got a date to see her on monday 9.30 so at last we have got the ball rolling

Little~shedevil~dee
31st July 2004, 08:40 PM
only sunday to go and then i get to see my gp yay :hammer: i think i will write every thing down i want to ask her so i dont forget any thing

jfkimberly
31st July 2004, 09:28 PM
That's a very good idea. I did that before my GP appointment, and it was so helpful.

Marti
31st July 2004, 09:29 PM
That's great Dee! it sounds like you're finally getting a bit of attention. sheeesh... took them long enough. anyways, good luck on monday!

BlueIce
31st July 2004, 09:48 PM
Originally posted by Little~shedevil~dee@Jul 31 2004, 08:40 PM
only sunday to go and then i get to see my gp yay :hammer: i think i will write every thing down i want to ask her so i dont forget any thing
be sure not to forget your paper as I did friday :-) But I pretty much remembered them so it's wasn't that big a deal.

Carly
1st August 2004, 08:31 PM
Good Luck Dee! You deserve the best care.. they better give that to you... OR ELSE! :evil: :rant: :soapbox:
me---> :twak: <----- doctor

jfkimberly
1st August 2004, 09:11 PM
Good luck tomorrow, Dee! Be sure to come back here and tell us how it went as soon as you can. And don't be afraid to ask for whatever you want when you're in there. As my dad taught me: All they can do is say no, but you won't know unless you try.

Lieve
1st August 2004, 09:49 PM
Good luck Dee! I'll cross my fingers for you tomorrow. ;-)

Little~shedevil~dee
1st August 2004, 09:54 PM
awwwwww thanks every one i will let you all know how it goes , i have every thing writen down its in my bad as i very good at forgetting things lol , carly if they dont give me what i want i might have take me with you so you can :twak: lol

Carly
2nd August 2004, 12:58 AM
Sounds good Dee!

Little~shedevil~dee
2nd August 2004, 12:14 PM
At last i have some great news yay lol
i saw my gp today and she thinks i should see a scolosis specialist
she is sending me to stanmore to see a dr lehousky hes meant to be a great doctor she knows him very well and she even has worked with his wife , she dont know how long his waiting list is but is trying to hurry it up but at least thats a start
also shes given me some tables called amitriptyline for the back pain
i am so happy

BarmyArmy
2nd August 2004, 12:24 PM
That's great news Dee, you must be so happy :niceone: My Aunt takes those tablets for her fimbromyalgia(sp) and they help her. I hope you don't have too long to wait to see the specialist.

Lieve
2nd August 2004, 12:46 PM
That's good news Dee!

I hope you don't have too long to wait to see the specialist.

Me too! *Fingers crossed for an appointment very soon*

Little~shedevil~dee
2nd August 2004, 01:12 PM
Thanks guys i to hope i dont have to wait to long
i cant get this smile of my face i am so happy lol
i cant wait to start my tablets

tonibunny
2nd August 2004, 01:47 PM
Brilliant news Dee :) Stanmore is fab - it's where I was treated throughout my childhood, and of course Jonny has just had his surgery there too. It's probably the best scoliosis place in the country!

Amytriptilene is also an excellent drug - makes you a bit dozy the first few days you take it, but that soon wears off.

sins
2nd August 2004, 01:57 PM
I'm so pleased Dee.At least you'll get some decent answers this time.The waiting list might be long but well worth the wait.

Little~shedevil~dee
2nd August 2004, 02:19 PM
thanks toni stanmore does sound great
i dont mind if they make me dozy thats one if the problems i been having is trying to fall asleep
thanks sins i dont mind waiting now that i am seeing a scoliosis specialist :D

andrea
2nd August 2004, 02:24 PM
That's terrific news Dee. We're there too, so who knows, we might bump into each other! It really is a top place. Keep us up to date with when you get an appt. Let's hope it's soon.

Little~shedevil~dee
2nd August 2004, 02:28 PM
thanks andrea i will keep you updated
also i hope i do bump in to it would be nice to meet you

Carly
2nd August 2004, 05:04 PM
I am so happy for you!!! I am also glad that you got the care you deserved. I guess I wont have to do this :twak: to the doctor ;-)

Little~shedevil~dee
2nd August 2004, 06:42 PM
lol i might keep you at hand just incase the specialist plays up lol

Little~shedevil~dee
5th August 2004, 12:37 AM
i know doctors are different
how long long did you wait jonny untill you got an letter to say you have got an appoinment for the specialist

mark
5th August 2004, 12:48 AM
Great news Dee i am so chuffed for you

Little~shedevil~dee
5th August 2004, 12:51 AM
thanks mark , i am so happy even the pain killers are working , but the down side is that my tongue has gone yellow lol and i have a nasty taste in my mouth and i get a bit dizzy , but its only been 2 days and they pain is a lot better and at last i am sleeping better

mark
5th August 2004, 01:01 AM
I feel like that every morning but thats usually self inflicted by me and the bottle

Little~shedevil~dee
5th August 2004, 01:06 AM
i hope my yellow tongue does goes soon as i dont think my b/f would kiss me with it lol dizzy my b/f says i am allways been a dizzy blonde lol

titch
5th August 2004, 01:23 AM
If your tongue is reacting like that, you should probably get some Corsodyl to gargle with at least once a day, keep ulcers at bay. I didn't know to do that when I was taking amitriptyline daily for a month, and got a truly monumental ulcer on the bottom of my tongue :cry: It was terrible, and as soon as I mentioned it to my friend who has also been on it at various points she said that she had been told when she started to use Corsodyl to avoid the ulcers as she is prone to them anyway.

I'm so glad to hear you're sleeping better :niceone:

mark
5th August 2004, 02:00 AM
I was on that titch on a biggish dose and i kept getting a really dry mouth but never had ulcers, sorry to hear you had ulcers there no fun at all

Little~shedevil~dee
9th August 2004, 09:22 PM
well its been a week since on been on amitriptyline the pain is not so bad , i still get some pain now and then but its not to bad
one problem my tongue is green now i have been using a mouth wash its not helping me . the other night my tongue went bright red and felt like it was on fire so i had to suck an ice cube all night also i have got this bad tast in my mouth ewwwww

Little~shedevil~dee
9th August 2004, 09:35 PM
still no letter with an date to see the specialist :nut: and my gp is on holiday for 2 weeks

Little~shedevil~dee
10th August 2004, 05:09 PM
well i have been to the doctor as my mouth has been so sore .
its not the pill i have been on , i have got thrush in my mouth :mope: i have been given pastilles to stuck 4 times a day , they taste so bad and they got to be sucked sloly not to be swallow whole or chewed ewwwwwwwww :woe: :rofl: make me want to :vomit:

floralgypsy
10th August 2004, 05:14 PM
Oh dear, Dee. I hope the pastilles work for you and that your mouth is feeling better in no time!

Little~shedevil~dee
10th August 2004, 05:31 PM
thanks hun me to as i cant kiss my b/f untill its all gone and i dont think he wants trush but its going to be fun winding him up lol

mark
10th August 2004, 09:31 PM
Poor old boy friend

Little~shedevil~dee
11th August 2004, 07:55 PM
yeah poor boyfriend . i saw him today weird thing is hes got thrush to but some where else nothing to do with me tho lol he says its because hes been sweatey where hes been working all day awwwww poor thing lol :roll: :glee: