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Abbi
24th July 2004, 12:05 PM
Hey Everyone, It has been about three months since I last saw someone about my back...so this week, my mum had been calling up the hospital...a lot, cos my back was really sore :nut: so anyways, the appointments officer called yesterday and she gave me an appointment to see the orthopedic surgeon Aug 11, which is great.... :niceone: I know it won't take the back pain away, but it is a step closer...and at least I will know what my back is like....I think I will be getting x-rays, I'm not sure, but I will keep y'all updated!

BlueIce
24th July 2004, 01:01 PM
that's good news! I hope you'll be getting the answers you want!

Little~shedevil~dee
24th July 2004, 01:39 PM
great news good luck hun

Liv
24th July 2004, 02:41 PM
Now that's what I call a fast appointment! Good luck Abbi!!!!!

Blair
24th July 2004, 04:05 PM
Awesome! Best of luck!

sins
24th July 2004, 07:18 PM
That's great news Abbi.It's always a good idea to keep the pressure on to get your appointment.Hopefully he's got good experience with scoliosis.
Sinead.

BarmyArmy
24th July 2004, 08:55 PM
That's brilliant Abbi :niceone: I hope you get the answers you're after and that you feel better soon. :D

Marti
24th July 2004, 10:38 PM
That's wonderful! It sure is nice to hear about people actually getting appointments when they're in pain instead of having to wait for ages. Makes me not want to lost hope completely in the medical system. Anyways, good luck at your appointment and tell us how it goes!

Carly
24th July 2004, 10:51 PM
Yeah! Good to hear!

Abbi
24th July 2004, 11:08 PM
The Surgeon I will be seeing is either Mr eams or Mr hamilton, there is only two in Northern Ireland. I do know that Mr hamilton has being treating ppl with scoliosis for ten years, and he operated on mum's friends daughter, and it went well, which is good. Surgery is a possibility and I am kind of scared about that fact...cos I mean can't you end up paralysed or something, like there is a chance of that happening.

does anyone know what will go on at this appointment...like I asume I will get x-rays since my others got "lost"....I'm not sure!

I am so happy.... :) that I got my appointment, I was beginning to lose all faith in the NHS!

Thanks for all your replies. Talk to y'all later.

sins
24th July 2004, 11:47 PM
You'll be sure to get x rays and they'll use those to measure the angle of the curve and make sure to ask the degree of the curve.At 17 you're most likely too old for bracing and you may be fully grown.
It's hard to judge from looking at your picture in the back gallery but it does look like you might be asked to consider surgery.It might be possible that they could monitor it for a few months to see if it was stable.
Just take it step by step and just see what the surgeon thinks first.If he suggests surgery, don't panic.Take your time and get all the details about your condition and ask questions.Never be afraid to ask questions!
If you're wondering about what to ask your doctor there's plenty of younger members here who'll answer anything you need to know about modern surgery and what it's like.You're not alone here and it's reassuring to know that complications with first time surgery are exceptionally rare.The spinal cord is usually monitored during surgery to help the surgeon avoid injuring you.
It's good that you have such a quick appointment.Top marks to your mother for contacting the appointments officer.Definitely mum of the month award!! :niceone:

Jonny
24th July 2004, 11:55 PM
That's good to hear - good luck at the appointment Abbi!

Kayla
25th July 2004, 04:32 AM
thats great to hear I hope you have a great appt.!

lindzi_11
26th July 2004, 10:44 PM
Good Luck! It'll go greatt! :D

andrea
27th July 2004, 01:42 PM
Good luck with the appointment. We are back at our consultant's the day after you checking up on whether Erin's cast is working. If you can, try and write down all the questions you have for the surgeon as you think of them. We had so many that I left the first appointment still wanting to know more, so by writing them down you can make sure you make the most of the time you have with him.

Take care
A and E

Abbi
28th July 2004, 11:34 AM
I cant actually think of any....what sort of questions would you ask him?
Well i know i definately want to know what my curve(s) is/are cos I am not travelling 50miles to see him and not know my curve degree.
I also want to know if I will need surgery, but I am sure he won't tell me there and then.
I dunno....any others you guys think i should ask?

DublinPauline
28th July 2004, 12:02 PM
Perhaps you could ask him what degree curve you would need to have for him to consider surgery to be necessary.

Marti
28th July 2004, 11:22 PM
You should also ask him if he thinks your curve will increase with time.

Abbi
30th July 2004, 11:59 AM
Hey, well I got the actual appointment letter yesterday and it is @ 10.10am, well that is my xray time, but my appointment with the surgeon is @10.30am. I will be getting my curve degree, cos my mums friends dauughter had the surgery last year my the same surgeon I will see and on her first appointment she got her curve dehree done....
Well i will keep you all updated.

Kayla
30th July 2004, 07:44 PM
good luck :-)

jfkimberly
30th July 2004, 08:19 PM
Good luck at your appointment on the 11th, Abbi. I hope you get some relief, or at least some answers.

Carly
1st August 2004, 08:32 PM
I just cant imagine not knowing my curve from the beginning.... Good Luck Abbi!

BarmyArmy
1st August 2004, 08:40 PM
I wasn't told the size of my curve when I was diagnosed 10 years ago and I still wasn't told the size when I saw the consultant a few months back. All they keep saying is that I have a mild form of scoliosis and it's not that bad so I shouldn't be that concerned about it. :woe: But at the same time they haven't got a clue why I'm in constant pain and the doctor went for that very helpful "chronic mechanical back pain" as an excuse. :mope:

Carly
1st August 2004, 08:54 PM
Cant they just measure the curve... even if it is for curosity sake?

BarmyArmy
1st August 2004, 09:03 PM
Nope :( I saw my x-ray when I was up and admittingly it's not that bad compared with some folk on here. I have a small kink in my lumbar area and another one near my left shoulder which although I hadn't been told about orginally I do sometimes get stabbing pains in my shoulder. Anyway when I asked about the size of the curves he said that it wasn't that big and they hadn't measured it because in his opinion it had nothing to do with exteme pain I've be getting for the past 7 months. But then that appointment wasn't that sucessful anyway :nut:

Lieve
1st August 2004, 10:06 PM
What a stupid thing to say, measuring the curves can't be that difficult and I'm sure it's something you want to know even if it's not as bad as some of the people here. And if it's not the scoliosis at least they can search after the raison why it's hurting soo much. :soapbox:

:hug:

BarmyArmy
2nd August 2004, 12:24 AM
Thanks Lieve :niceone:

I also think it has to do with time and money, the doctor didn't think it was worth finding out so the hospital won't investigate. All I get from them was that everything I'm doing (TENS, painkillers, physio, trying to loose some weight, swimming, buying suitable furniture and the like) was right but I will have periods when the pain will be severe. They don't see any reason for my strong pain so I have to just get on with it, terrible eh? If the'd seen something on the x-rays then they would have followed it up but they were clear and there isn't any other medical problems. Hence the chocolate eating, they have cheek to wonder why I comfort eat :D

It's hard sometimes to explain my condition to others when I don't look ill, unless of course they see me struggling to bend or lift things, then they realise how bad my back pain is. How are you supposed to explain to people (work mates and friends) when you can't understand yourself?

Abbi
11th August 2004, 12:32 AM
Hey everyone!!!! Guess what, this is totally UNFAIR! but the hospital rang today and they where like, oh Abigail's appointments has been cancelled, becuase mr Hamilton (my surgeon) has to go an do an emergency operation tomorrow :cry:

Soooo.....well I was and kinna still am a little cheesed off about it, I am really NOT a happy bunny today. I cant believe that this is happening to me.
I mean I wait for three months and I am all ready, and bamm!! no appointment
So anyways, another thing, the surgeon that I am to see, is going on his vaccation from next week, and the scoli clinic is only every wed, so I have to wait....hmmm lets see, until maybe October to see him :woe:
Why does stuff like this have to happen to me!!! :nut:

Thnx for your support guys, love ya all.

Abbi

jfkimberly
11th August 2004, 12:39 AM
Awww! Abbi, I'm so sorry! I know how I would feel if my appointment got cancelled after waiting for so long... I hate this for you!

:rant:

Me--> :twak: <--hospital

mark
11th August 2004, 12:42 AM
That stinks Abbi you have been treated apalingly

jfkimberly
11th August 2004, 12:46 AM
I'm surprised they didn't reschedule you as soon as they cancelled your appointment. The least they can do is give you priority over other patients, since you've already been waiting.

BarmyArmy
11th August 2004, 02:26 AM
Oh no I just wished you luck in the other thread :ph34r: That's so unfair Abbi :(

Carly
11th August 2004, 03:40 AM
That sux Abbi.... I hope you can reschedule ASAP!!

My brace appointment was cancelled and I remember I had to wait awhile to get another one. Darn Hospitals!

Kayla
11th August 2004, 07:17 AM
I remembered a surgery got cancelled on me the day before because the doctor didnt realise it would be so complicated! JEEZE sorry it got canceled I know it sucks!

jfkimberly
11th August 2004, 07:29 AM
I dunno, Kayla... if that's his reason, I think I might have asked for a different surgeon after that. Did he suddenly feel in over his head, or something?

titch
11th August 2004, 10:51 AM
Abbi, I think that goes against the Patient's Charter - it's possible that it has changed, but it used to specify that you should be seen by a surgeon within 3 months of referral, and in addition had guidelines as to how soon you should be rescheduled if your appointment is cancelled by them. I'm really sorry this has happened to you :(

BlueIce
11th August 2004, 11:09 AM
wow that really stinks. I would be so mad if they did that to me.

tonibunny
11th August 2004, 12:51 PM
Oh no :( I'm really sorry to hear that Abbi :hug:

andrea
11th August 2004, 01:29 PM
Abbi, I'm so sorry this is happening to you. I think we all know the frustrations of the "system" at times, but it really sucks.

sins
11th August 2004, 02:22 PM
Abbi,
we're so disappointed for you..... :squeeze:
Three months is very long to have to wait for a new appointment.I think it's time for your mother to get back to the appointments office again and inject a bit of venom.It's unacceptable that someone with obvious scoliosis not to mention the pain has had an appointment cancelled at the last minute.
If that fails get your gp to ask for an urgent referral as your condition is "urgent" at this point.
Finally any chance that you could consider a private appointment?I know it costs but might get you seen sooner and an answer to the question of needing surgery or not?
Sins

Blair
11th August 2004, 07:02 PM
That's just awful, Abbi! I was soooo mad when my first appointment with my surgeon got cancelled... And it's not like they can fit you in sometime next week... You end up getting bumped to their next available appointment. So a month wait turned into a three month wait. I was mad.

Kaja
11th August 2004, 07:11 PM
Aw, I'm so sorry to hear that :squeeze: So unfair!!!

Kayla
11th August 2004, 07:38 PM
Originally posted by jfkimberly@Aug 10 2004, 11:29 PM
I dunno, Kayla... if that's his reason, I think I might have asked for a different surgeon after that. Did he suddenly feel in over his head, or something?
actually it was a she. it was the doctor who going to put in my G tube and then the day before looked at my x-rays (after threee months of having itme too) and figured out I have too many shunts and it will be too difficult for her. which is ok because she isnt a surgeon just a gastonologist but still you couldce looked at them 3 months ago!

Liv
11th August 2004, 07:39 PM
That's horrible!!!! I can't believe it!! :-( Poor Abbi..... :mope:

jfkimberly
11th August 2004, 07:45 PM
Kayla,
Did she still end up doing the surgery, or did you have it done by someone else?

Lieve
11th August 2004, 08:17 PM
Oh no I'm sorry to hear that Abbi! :squeeze: Can't they reschedule it sooner?? :soapbox:

andrea
11th August 2004, 09:19 PM
I'm afraid I agree with Sins. While I am no advocate for a private health service, the consultation that we sought while waiting for information was the best 150 I've ever spent. Yes, it's a lot, but if we hadn't we would still be waiting for Erin to be put in a cast and time is something we don't have with her condition.

We waited 2 days for an appt and then were referred to a specialist who we saw a week later. A week after that we were in hospital.

Sorry if I sound like i'm against the NHS - I'm not at all, there is a fantastic service out there, but sometimes we need some help in getting access to it.

I'd say it was worth considering if you can possibly afford it.

*gets off soapbox*

Kayla
11th August 2004, 09:47 PM
Originally posted by jfkimberly@Aug 11 2004, 11:45 AM
Kayla,
Did she still end up doing the surgery, or did you have it done by someone else?
no we had to go to a surgeon I posted all this on SLife before I had the surgery

Abbi
17th August 2004, 02:29 AM
My mum called up the hospital today, to see if I could get an appointment any time soon, and they rudely told her "well she wont get seen before September 8th, because Mr Hamiltion is on Holidays."
So we are still playing the long and never ending waiting game....I really hope that I get an appointment soon, because its just the whole not knowing ANYTHING thing that annoys me :nut:

Well When I get an appointment I will give you another little update....thnx for your continued support guys.... :niceone:


Abbi xx

Kayla
17th August 2004, 02:35 AM
Yah I know how you feel! I am sorry!

lindzi_11
17th August 2004, 05:07 AM
september 8th is when skool starts back up lol

Abbi
17th August 2004, 01:00 PM
Yeah I know....well actually no, I start September 7th, but close enuf. I really wanted an appointment before school started again, cos that means I have to take time of school, not that I am complaing, its just this is a really important year for me (my final year) and I need to work hard to get the grades i need to get into uni

Abbi
19th August 2004, 10:50 AM
Hey Everyone, most of you already know this, but I would just like to post it anyways, because Im sooooooo happy about it.
Well most of you know that I have had it pretty hard recently, with my scoliosis (well I think i have) I have been waiting to see someone since May, and it has been a long wait.....I was originally given an appointment for August 11th, but it was cancelled the day before (August 10th) due to an emergency surgery so I was pretty annoyed at that. I was then told that the surgeon I was to see, was going on holidays for three weeks.
But well to get to the point of this post, The hospital called yesterday, and gave me an appointment for September 8th, so I am sooooo happy!!! yeeay! cos at the moment I know nothing about my back, I don't know If I need surgery or what my curve is....but I will know soon yeaaaay! :D

Well talk to y'all later.
Abbi x

ivanleg
19th August 2004, 11:16 AM
Congrats Abbi!
That's only 20 more sleeps until the big day.
Hope you get all the answers you want.

Kaja
19th August 2004, 11:19 AM
Yay, congrats :D I hope everything goes well :-)

sins
19th August 2004, 11:26 AM
Fingers crossed for a good consultation.You've waited long enough.

BlueIce
19th August 2004, 11:32 AM
Great news! Hope all goes well and you get the answers you've been waiting for so long

titch
19th August 2004, 11:52 AM
Excellent news :D Hope it all comes together this time and you finally get some useful information and help!

Carly
19th August 2004, 12:37 PM
I am so glad that you are finally going to get some answers... Good Luck!

mark
19th August 2004, 12:37 PM
Good luck abbi i am sure things are going to work out right. Keep us all informed

Mark

Jonny
19th August 2004, 02:16 PM
About time... good luck and get straight on that computer and keep us updated Abbi :-)

Little~shedevil~dee
19th August 2004, 02:31 PM
thats great news good luck hun
i am still waiting for an date i am not sure if i should ask my gp or not i dont want to be a pest

sins
19th August 2004, 02:54 PM
Poor Dee..
It's not been long since your GP referred you so for a hospital like Stanmore you may have to be patient.It might be an idea to phone the hospital and ask how long are the waiting lists for scoliosis clinics.

Little~shedevil~dee
19th August 2004, 02:56 PM
thanks sins i will try it
i am one of them people who hate waiting lol

Little~shedevil~dee
19th August 2004, 02:57 PM
and its been 2 weeks and 3 days i think lol

lindzi_11
19th August 2004, 08:50 PM
TONZ OF LUCK! XOX! :squeeze: 8) :P :D

Abbi
19th August 2004, 09:00 PM
Dee....you should really pester your GP and any one else, My mum has called the hospital countless times. A little perseverance is all it takes!!!

Thnx for your replies, and thoughts, I am sorry if I complain so much, I try not too....I will keep you all updated as soon as I know anything.....ooooh 2weeks and 6days!!!! Im kinna excited but kinna scared too....my mum is almost certain i will need surgery, she always talks about it, and is like well after you get this operation, and stuff like that.

Oh yeah also I wanna be a nurse, thats what I am studying for at the moment, my mum doesnt think i should though, cos after my operation (which i dont know I will be getting) my back will be weak. Is this true? Should I be considering another career??

Abbi x

BarmyArmy
19th August 2004, 09:22 PM
That's brilliant news Abbi :squeeze: I hope you get the answers you're after.

I'm not sure about physically (as we all have differents levels of flexiblty) but mentally you would be a great nurse. You would have the right attitude, a high level of understanding and would be great at putting patients at ease. If you're interested in nursing as a career you should definately find out the options. :D

andrea
19th August 2004, 09:26 PM
Hi Abbi

i can't help with your question about stength I'm afraid, but I think you'd be great as a nurse - the industry certainly needs people like you.

Great news about the appt. Looks like September will be an important month for a few of us - with Jonny's check up and your appt. I'm sure there's some more. Hopefully Dee will be in there too!

A

Blair
19th August 2004, 09:34 PM
Hey Abbi- that is really wonderful that you got a date and don't have to wait *too* much longer.

I'm just as strong as I was before my surgery, and I feel better too, which makes me feel infinitely more functional. At 8 months post op, I am working as a horse trainer.- It's a tough, physical job, but I'm feeling up to it.
I was considering becoming a nurse for a while (until I figured out the wait list to do clinicals was a few years long and I can't wait that long to get a degree and a real job). My mother is a Registered Nurse, and she was very supportive of that inclination. Yes, you have to be reasonably strong and healthy to become a nurse... But my mom knows of several people she worked with who had physical shortcomings, and got along perfectly well. My biggest concern was moving patients: you aren't supposed to do that sort of thing alone anyway. When they moved me in the orthopaedic unit following my surgery, they had no less than 5 people to transfer me from bed to bed. So done properly with a good outcome to your surgery (if you have to have it), lifts shouldn't be too big of a strain.

DublinPauline
19th August 2004, 10:06 PM
Good news about the appointment, Abbi.
Good luck with it. :niceone:

Kayla
19th August 2004, 10:13 PM
Good luck! I hope you get all your answers!

Abbi
20th August 2004, 12:27 AM
Andrea ~ how did Erins Appointment go the other day, I was thinking about both of you.
I would just like to say that I think you are doing great copying with Erin's condition, you will definately become a stronger person through this, I know I have.

Thank you all for your kind words. I will make sure to keep you updated!xx

Little~shedevil~dee
20th August 2004, 02:25 PM
good luck abbi i will be thinking of you
i got to go and see my gp soon to get more painkillers so i will ask then
and thanks Andrea i hope so to
give little erin a hug for me

flutemwc
21st August 2004, 01:20 AM
i already started school

Kayla
21st August 2004, 05:08 AM
Sept 7th is when I start school :cry:

Carly
21st August 2004, 06:31 PM
I start september 1st. Why cant we start after the long weekend. I just dont get it!

Marti
22nd August 2004, 09:54 PM
That's awful Abbi! It's crazy that you should have to wait so long for an appt., just to get it cancelled and have to wait again.

Marti
22nd August 2004, 10:13 PM
Yay for Abbi! That's great that you'll finally be getting your appointment. I just got back from vacation and read your other thread and i'm so glad that you don't have to wait another three months. good luck on September 8th! (gives you a reason to want school to start, right?)

Abbi
23rd August 2004, 09:26 PM
hmm....sorta! lol I really do wana get to see the Doc soon, cos at least I will know what is happening.
What will happen if i just have mild scoliosis, and surgery or bracing wouldnt work?? Is there any other treatment? cos some nights i am in a lot of pain :(

BlueIce
23rd August 2004, 11:09 PM
Abbi, you could try yoga. It seems to be working for the pain and even reducing the curves according to some people. There's a thread about this somewhere, maybe you should look into it.