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slam2316
3rd May 2006, 08:16 PM
Hello everybody,

My name is Sean, and I have kyposis. I believe the doctor called it Scheurmanns Kyphosis. I am glad I found this place as there is not a lot on the web about this condition. I have not been to see a spine doctor yet, I have only been to an orthopedic surgeon who refered me to a spine doctor. I will see the spine doctor at the end of June. I live in Key West, FL so it is kind of hard to see a specialist without travelling at least three hours to Miami, FL.
Well, I am rambling on, so I will close for now.

Thanks for listening,
Sean

sins
3rd May 2006, 09:26 PM
Hi Sean and welcome,
good luck with your June appointment.The distances to be covered arounf the US for medical treatment are astounding, but hopefully worth it to get the best evaluation of your condition.Hope you like your time on sso .
Sins

titch
3rd May 2006, 09:56 PM
Hi Sean :welcome2:

I know what a drag it is to have to travel for treatment, but if that's what it takes it is worth it to get a good doctor. I travel about 3 hours each way to my doctor because I needed someone who deals with previously fused adults on a regular basis. Fingers crossed that you can find someone nearer though!

If you go to http://www.srs.org/locator you can check out members who are in your area. Not all of them will deal with adults, but it could give you a starting point if you want to try to find someone local to either see or get a second opinion with once you've seen whoever your ortho has referred you to.

mark
3rd May 2006, 10:12 PM
Hello Sean

Welcome to SSO i am glad you found us we have wealth of experience in this forum especially where Schueremann's is concerned there's me who hasn't had surgery, john who has, phil who has so has andy and sally. Who all post regularly.

I hope we can answer all your questions, offer you all the support you need and you stick around and enjoy the forums.

Take care

Mark

Little Ali
3rd May 2006, 11:24 PM
Hi Sean,

I'm Ali, 24 and have Spina Bifida with Kyphoscoliosis. You've definately come to the right place. We're all a lovely bunch and will be more than happy to answer any questions you may have.

Take care!

slam2316
4th May 2006, 12:56 PM
Thank you so for for all of the positive response. I am looking forward to being a member.

:surfin:

tonibunny
4th May 2006, 03:29 PM
Hey Sean, welcome to SSO, I'm glad you found us :welcome2:

Toni xx

Jonny
4th May 2006, 06:56 PM
Welcome to SSo Sean :-) I had (kypho)scoliosis surgery July 04 and March 05.

The Scheuermann's brigade is growing :D

mark
5th May 2006, 09:55 AM
Originally posted by Jonny@May 4 2006, 04:56 PM


The Scheuermann's brigade is growing :D
We are going to take over the world :-D

MOB
5th May 2006, 07:43 PM
Hi Sean welcome to SSO
Mob

slam2316
5th May 2006, 08:11 PM
Originally posted by mark@May 5 2006, 07:55 AM

We are going to take over the world :-D
Thats right!! :niceone: :glee:

Amazed Jean
6th May 2006, 08:37 AM
Sean, Welcome to our wonky world. We may be the strangest group around but we are here for you anytime!I am Jean (Amazed) is my alter ego. I am rapidly approaching 55 years old, and have some large curves that never have been treated - which I DO NOT RECCOMMEND. My initial advice to all is to keep copies of your medical records including photos or copies of xrays etc. and try to get copies of tests etc. No one else will take as good care of your records as you will. Trust me you will need this info at some point. Also a notebook to write down your questions and answers from any doctors you see is a great idea. Just write it down when you think of it and take your notebook to your doctor appointments. Welcome, welcome.

zerodegrees
9th May 2006, 05:32 PM
Hi Sean.

Welcome to sso. Glad you've found us. My name is john, i'm 36 & had surgery for scheuermann's kyphosis in october,05. I'm just about to return to work next week!

Anyway as mark said everyone here is just fantastic & incredibly supportive (& a bit mad)! You'll fit in nicely!

welcome again.

cheers

john

sticktrix
11th May 2006, 01:51 PM
Welcome in Sean!
Glad you found the site! The people are very kind and helpful, and I'm sure they'll also provide suggestions and opinions if need be.
Enjoy the ride!
MARCO


P.S. I know guys, I should write more often, but having only one internet connection and two sisters doing exams right now doesn't really help!

titch
12th May 2006, 08:01 PM
Heya Marco, glad to know you're still around - look forward to seeing more of you once the exam fever is settled down and you're allowed back on the computer again :P :D

mark
14th May 2006, 08:31 PM
WEE HEE Marco me old sunshine great to see you back. You want to watch them younger sisters of yours i hope there not taking advantage of your good nature.

Hope to see you on msn soon i missed your chats

Phil
15th May 2006, 01:50 PM
Just thought I would pop in and say welcome along with a good luck. Around 6 months ago I had corrective surgery for kyphosis and scoliosis much like John. Hope it all works out :)

claire
16th May 2006, 01:45 PM
Hi sean.
I have also had surgery and I am pleased with the result.
Good luck with your appointment.

slam2316
18th September 2006, 10:07 PM
I just figured I would update you all. I have been to a spine surgeon a few times since my last post and I am having surgery on October 6. It is a few weeks away and I am getting kind of nervous. The doctor told my I have an 80 degree curve. In a way I am looking forward to it and in a way I am not. I think I will be all right though.

tonibunny
18th September 2006, 11:56 PM
Hey Sean,

Gosh, Oct 6th, that's very soon! You'll be fine :D Please stick around so we can help keep you from being too nervous. Just concentrate on how much better you'll feel after the surgery :hug:

Toni xx

jfkimberly
19th September 2006, 12:00 AM
Hi Sean... I've been a member here for a while, but kind of fell out of things for a bit (got distracted with my boyfriend, health issues, and life in general), so I didn't get a chance to welcome you back in May. But I'm here now, so I'll tell you: I wish you the VERY best of luck with your op. I hope you get a great correction. I had my scoli surgery when I was a toddler, so I can't really relate to your situation, but there are lots of people here who have been in exactly your spot, and they'll be happy to answer any of your concerns. Ask all your questions... knowing what to expect really makes things easier. Good luck!

mark
19th September 2006, 12:28 AM
Hi Sean where thinking of you hear and if we can help in any way we will

good look for the 6th

Octobers a good month

take it easy

mark

Marcilo
19th September 2006, 08:43 PM
Originally posted by slam2316@Sep 18 2006, 08:07 PM
I just figured I would update you all. I have been to a spine surgeon a few times since my last post and I am having surgery on October 6. It is a few weeks away and I am getting kind of nervous. The doctor told my I have an 80 degree curve. In a way I am looking forward to it and in a way I am not. I think I will be all right though.
Sean,

Are you getting your surgery done in Key West or you plan to travel to Miami for that? If you are going to be in Miami how you plan to see your doctor for your future visits

zerodegrees
21st September 2006, 10:03 AM
good luck!

crkcallie
1st December 2006, 12:23 AM
Good luck with your appointment and I hope all goes well. :)