View Full Version : Hi I'm new!
1st July 2004, 04:54 PM
Hey! I'm new here so I guess I should introduce myself! Well My name is Abigail, or Abbi. I am 17 years old and I am from Ireland.
I was diagnosed with scoliosis in March of this year, I am not sure of my curves or anything, cos I havent been seen by a surgeon, just a physio, GP and a consultant.
A small story about my scoliosis is on this webpage if you wanna check it out: http://abbi1986.mysite.wanadoo-members.co.uk
At the moment for the back pain (which is really bad) I am using a TENS machine.
1st July 2004, 05:01 PM
Hi Abbi and :welcome2:
I really liked your site :niceone:, especially the photographs.
Good luck with your appointment and if there's any questions you'd like to ask us then feel free.Hope you like it here.
(from the other end of Ireland....Co Cork)
1st July 2004, 05:05 PM
Welcome to the website. :welcome2: :-).
I live in Dublin and had a spinal fusion in Cappagh Hospital 25 years ago this month. (I was 13 - yes, I'm ancient.) I'm married with a four year old daughter. Luckily, I don't suffer from any back pain.
There are loads of people here who have had or expect to have surgery so you'll make lots of new scoli friends! Your site is very impressive.
1st July 2004, 05:09 PM
Welcome to our family :wave: You're going love it here. I use a TENS machine too and have done for the past 9 years so let me know if you have any questions, .
I'm 28 and I'm from Dundee up here in Bonnie Scotland. As you may have noticed from other threads I work as a part-time bookseller and I have a mild form of scoliosis.
Hope to see you around the site
1st July 2004, 05:11 PM
Thank you all, for your great welcome! I am sure I will enjoy being part of the SSO family! Who here has had surgery before?
Sinead, I am from County Londonderry by the way!
Oh yeah how do you get a picture on this site, I have a pciture of my back you see.
Thanks again! :niceone:
1st July 2004, 05:20 PM
Welcome to the site. I'm a newbie too (no idea how to rid myself of that title), although my case is slightly different as it is my daughter Erin who has scoliosis and not me. As she is only 22 months she's a little young to venture on to the site so I'm here on her behalf trying to learn as much as possible. There are some really great people on here, all at different stages of treatment, so I'm sure you'll find it a great support network.
Good luck with the consultant appointment.
1st July 2004, 05:27 PM
Wow 22 months that is young! What treatment is she having for her scoliosis?
If you want you can check out spinekids.com there is lots of parents on there, some who have small children with scoliosis.
1st July 2004, 05:31 PM
She's currently in a plaster jacket, which is basically a plaster cast that goes from her neck to her hips with a small hole for her belly. She'll have the plaster jacket changed every 3 months to allow for growth. We won't know for a while if it will work.
If I could work out how to add a photo, I'd add one of her in her jacket, but I dont' have permissions apparently. I thought it was cos I was new, but you seem to have managed.
1st July 2004, 05:51 PM
I dont know how my pic came up...oh well!! If you have a look at my website you can see a picture of my back.
Aww that sounds tough, a plaster jacket....how is Erin finding it?
Good luck with further treatment :niceone:
1st July 2004, 05:53 PM
It's great to see you here :) I grew up with scoliosis as I was diagnosed at 6 months old, so I was treated with plaster casts like those that Andrea's daughter Erin is now wearing, before having braces and surgery. I'm 28 now and my back has been straightened beautifully :D
All the best,
1st July 2004, 05:54 PM
hi abbi welcome to the site :welcome: :welcome2: Good luck with your appointment i am like you i dont my curves and the hospital also lost my xrays
1st July 2004, 05:54 PM
1st July 2004, 07:03 PM
I've seen your pic in the gallery Abbi and that looks like quite a curve.
It's horrible to be in so much pain.Has your consultant discussed any treatment with you?
1st July 2004, 07:29 PM
Hey Abbi! :welcome2: Everyone here is so great! it's like one big happy sso family. Good luck with your appointment and be sure to keep us updated!
1st July 2004, 08:23 PM
YAY!!! Welcome to the site!!! :-) YAY we havent had a newbie in a while!!! hehe I hope you like it here!
1st July 2004, 08:27 PM
Hey, well, so far I have been to see a consultant in Londonderry, and in my opinion he was a little la de da about the whole thing....I mean he didnt even know I had scoliosis, like my GP didnt tell him...! but anyways, I am a little narked that my x-rays got lost. He told me I may or may not need to have an operation, cos they have to see if I have stopped growing and what my curve is. I have been told that they preform the operation on ppl who have curves more than 40* I think.
I really hate the NHS, I have been waiting for ages to see a surgeon and my back is very sore. Has anyone had the operation on the NHS, if so what was it like and how long did you have to wait. I hopefully im getting to see a surgeon in Belfast maybe mid July or Early August.
Sometimes I wish I could just wake up one day and it would be gone.
Thanks again for are your welcomes! :niceone:
1st July 2004, 08:28 PM
Heya Abbi - good luck and keep us updated! I'm 16 in the UK and have surgery next week.
1st July 2004, 08:29 PM
Hi Abbi! Welcome!
1st July 2004, 09:06 PM
Jonny, what hospital are you having the surgery in and how long have you had to wait. Also what are you curves?
I hope you don't mind me asking that! :P
1st July 2004, 09:31 PM
Erin is finding the jacket absolutely fine - it doesn't bother her at all. However, when it comes to having her hair washed she hates it as we have to hold her over the sink as the jacket is obviously permanent. While it wasn't surgery as such, she did have treatment under a GA and it was done on the NHS. Timings were: diagnosed by GP beginning of May and referred to consultant. Appt with him a week later and "surgery" and MRI on 8 June. Once they realised how severe it was (62 degrees) she was rushed through as an urgent case as it's really important to get little ones in jackets asap. Like Jonny, she is being treated at the Royal National Orthopaedic Hospital in Stanmore, Middlesex.
Sorry you're in a lot of pain. Hope it eases up soon.
1st July 2004, 09:58 PM
Hi Abbi, welcome!
btw a nice website you have :niceone:
good luck with your appointment and hope the pain will be gone soon
1st July 2004, 11:24 PM
Jonny, Good luck with your surgery on the 5th....I will be praying for you! Let me know how it goes! :niceone:
2nd July 2004, 12:02 AM
Hi Abbi.. sorry i am late on this welcome.. Long day at work! I am so glad you found us, it was the best thing I have done. If you have any questions dont be afraid to ask. WELCOME and good luck with your pain. Have you tried physio? That is what got rid of my pain for good.
2nd July 2004, 12:14 AM
Hi Abbi... Welcome to SSO! I'm having an ADD moment, so I'll say more later.
2nd July 2004, 01:00 AM
Originally posted by Abbi@Jul 1 2004, 07:27 PM
Sometimes I wish I could just wake up one day and it would be gone.
That won't happen unfortunately... But hey, you're not alone! I'm 21, from Belgium and I had surgery 5 years ago. I really hope you can see an orthopaedic surgeon soon!
2nd July 2004, 11:09 AM
Carly thanks for your welcome too!!! Yes I have tried physio...it was so nice I had a massage, Electrode theapy and accupunture (sp?) so it was all good...lol! At the moment I am usuing a TENS machine which helps somewhat, I have also found out that heat helps a little!
2nd July 2004, 03:06 PM
Pretty large curves you've got there, I'm surprised they weren't diagnosed earlier. Sorry to hear you have pain. Keep in touch and let us know how you get on; we're all one big happy family here. It's a very women-led family so you'll fit right in. :-D
2nd July 2004, 04:21 PM
Treatment on the NHS can certainly take it's time, but as long as you get to a proper specialist, the results can be first class :D I had a revision/salvage surgery at Queens Medical Centre in Nottingham in October 2002, with remarkable results.
I find heat helps with pain as well - some people ice really works well for, but I'd rather have a superhot shower. I also use Deep Relief gel, which has ibuprofen and menthol in it - I love the burning feeling it gives, but some people don't get on so well with it.
Anyway, good to see you here - its not great being stuck with this, but at least we all have each other :niceone:
2nd July 2004, 05:45 PM
I had accupunture, physio and massage too!
2nd July 2004, 05:53 PM
Im 17 (just) and i had the operation for scoliosis last august, i had a 80,40 and 22 curve/s. And now 10 months on i have no regrets at all, it took me 3-5 weeks to start to get back to normal (like eating stuff, walking further) but i did get a kidney infection (not everyone gets them, i was just unlucky) but it is well worth it in the end. Wear nice tops, nice fitting trousers like everyone else :-)
I had my operation at the Royal National Orthopeadic Hospital in Stanmore too, there very good there :)
2nd July 2004, 11:23 PM
Hey, I dont really like deep heat..it gives me a sore head!
Crazy16girl ~ thank you for your welcome, thats cool, I may need the operation, I dont know. I have to wait to see Mr hamiton the spine surgeon in Belfast this month sometime! He is good...or so I hear, he has been doing it for 10 years and has had no problems, which is a major plus!!! :-)
Thanks again for all your welcomes....I wont b on this board for a while cos I go to Hungary and Romania for three weeks on a mission trip, to work with orphans.
Talk to you all soon!!! :niceone:
2nd July 2004, 11:26 PM
AWW so sweet I hope you come back and become a regular wih us!
3rd July 2004, 06:30 PM
:welcome2: Hi! Welcome!! Sorrry I'm a bit late, but welcome anyway!!
5th July 2004, 05:07 PM
[FONT=Arial][SIZE=7][SIZE=14][COLOR=red] Hey v=everyone! My name is Lindsay and i'm new here too! :D
5th July 2004, 08:56 PM
i'm a little late , sorry .Welcome to SSO , i'm sure you will love it here .I've always found ice takes the swelling out of the spine and once the pain has gone I use heat to relax the muscles .But everyone has differant ways of treating and coping with the pain .I wish you luck on your journey with Scoliosis , it's not a nice thing to have but you can live with it and become a stronger person .I hope you enjoy the site and meet lots of people that help you through .Take care ,Pikey.
7th July 2004, 03:25 AM
Hi Lindzi! Welcome to SSO!
7th July 2004, 02:02 PM
Oh I'm late. Welcome you two :D :D
20th July 2004, 06:00 PM
Hey everyone, I just got back from my mission trip today....IT WAS SO AWESOME!!!!!!!!!! God is amazing! I have been changed so much, I feel that I am more confident and I am able to talk openly with people. they are such poor countries though, I mean I really dont think that we are grateful for what we do have over here!
Any questions you have I can answer.
20th July 2004, 06:39 PM
Welcome back Abbi.
Good to see that you got such benefit from your trip.It's when you see the poverty and deprivation that some have to endure it certainly makes one appreciate the priveleges that we have in your lives.Has the situation improved over the years in those orphanages?any kiddies with scoliosis?
21st July 2004, 01:48 PM
Well I didnt see any or hear of any with scoli....I only went to one orphanage, in Romania, It was better than I expected it to be though! They didnt really have that much, like in terms of toys and stuff, but they where very talented young children. Most of them where very behind with learning, like there was a 9 year old who could read or write. Most of them come in and they can't walk or talk sometimes. We donated money to them so that they could by a computer. It was very sad, I saw children in skips looking for food and children with no clothes or anything.
It was great to do the kids clubs, they just really wanted some one to be friends with and someone to love them really. I had a brill time, and it was great to share the word of God with others. :niceone:
21st July 2004, 05:27 PM
Hello Abbi sorry i am a little late on this one not been around for a few weeks. Wow another Irish member you will be taking over the world soon. Hope your enjoying the site its fun and friendly here and everyone looks out for everyone else
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