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Marcilo
28th November 2005, 08:42 PM
My first post here, I am glad to have found this site that has section on Kyphosis. I been researching Kyphosis and did not come across any fourm that discussed Kyphosis.

Thaleias spirit
28th November 2005, 08:49 PM
Hi Marcilo,

Glad you found us here.
Hopefully we have some information that may be of help to you. If you could tell us abit more about yourself maybe we could provide you with even more information?

btw, I'm chele and I'm 32. I have Juvenile Idiopathic Scoliosis with two curves, a thoracic curve of 155 degrees and a lumbar curve of 75 degrees.

Marcilo
28th November 2005, 09:20 PM
Bit about myself
I am 34, I wasnít even aware of my condition for a long time, it was all good 6 years ago or so, slouching and easy sitting while doing my job (Software engg). I did feel bit of curve in spine but then it was not bad and I had no pain. I considered it to be result of bad posture.

Four years ago or so, Went to specialist and he told me that I have a case of mild scoliosis and will need Physical therapy to strengthen my muscles and loosen up my hamstring which was super tight. I did PT for some time and since there wasnít any pain so I was not regular, my bad I should have continued.
My research on internet pointed that I had Kyphosis and not scoliosis. Doctor took my X-Ray front to back rather than sideways and I felt my curve when I looked into mirror sideways. I went to doctor again and asked him (his sectary) as to why I was not photographed (X-ray) side ways. Well that is when they noticed that I have Kyphosis too, close to 50 degress (at that time) and mild scoliosis. I think the term is Kypho-scoliosis.
I been trying to do some physical activity since then, taken up swimming and walking. I try to exercise every now and then and whenever I have time. I try to sit straight while working, Slouching is big no no, lie-down on the floor on my back for some time. I do have hump but I guess that is part and parcel of Kyphosis.

Thaleias spirit
28th November 2005, 09:31 PM
Whereabouts are you based Marcilo?
That way we can guide you in the right direction for help.

I was the same for years, knew something was wrong but had nothing done about it. Then I found a site tat gave me the info I needed and I set about getting a proper consultation. First one didn't go too good, second was much better. I'll be having surgery in the new year.

We have a member here who recently had surgery for schermann's kyphosis and got an excellent correction. I'm sure he will post here very soon.

Marcilo
28th November 2005, 09:36 PM
I am in southwest ohio (USA)
All the very best for your upcoming surgery.

I have consulted 2 doctors so far they say I don't need surgery, I need to work on it so that it does not get worse.

Thaleias spirit
28th November 2005, 09:44 PM
Your doctor, I presume he is just a general practice guy and not an actual orthopaedic consultant ? Your priority now is to find a specialised person in spinal surgery, not just in orthopaedics. And have a full assessment of your kyphosis done.

As fo working on it, a curve over 50 degrees cannot be eradicated by simply working on it. Physical Therapy / Physiotherapy will help keep you flexible but in the long term it will not reduce your curvature unfortuneately.

Let us see what information we can find for you.
I'm sure one of us here will know of someone in the states who could give you more insight and advice.

Phil
28th November 2005, 10:21 PM
Welcome. I have 75 degree kyphosis and 35 degree scoliosis with some other compensatory issues. Due for my first surgery next week. There is plenty of experience here including kyphosis so you are in the right place.

I am shocked that the kyphosis was not noticed along with the scoliosis. Kyphosis seems to be so underrated and ignored all over in general.

Marcilo
28th November 2005, 10:34 PM
Chele, doctor happens to be an orthopedic surgeon and that is one thing that puzzled me. I am not sure if X-rays were done after visiting him or before, most likely before I visited him. Well curve was not 50 degress when I visited him first time actually he did not even know I had Kyphosis, it was second time, around 7 months back, he told me itís close to 50 degrees. Yes, I agree curve can not be straightened but if I can stop it from getting worse that is a positive start.

Thanks Phil and all the very best for your upcoming surgery.
Yes, first time doctor did not even talk about Kyphosis and that made me mad later as to why was he was so careless. Worse still he sends in Doctor's Aid first and then his secretary. Talk about hierarchy

Phil
28th November 2005, 10:39 PM
At your age if the curve has progressed within the last few or more years the chances are it will further progress. Hope this does not come as a shock but generally if the curve progresses after you are fully grown it often continues. I would make sure you are seeing a specialist who can confirm this for you and offer you assistance and monitoring with your current curves.

If your medical care is anything like the UK you will have to keep an eye and fight. Sounds like you need to see a specialist so far.

Marcilo
28th November 2005, 10:43 PM
It was second time around when I confronted his secretary she asked for Side ways X-ray and then they said yes I have Kyphosis too

I too agree I will have to monitor this. Well I got another set of X-ray done and got MRI done after that, consulted another doctor just for opinion.

I guess I will have to change this "Specialist" of mine

Marcilo
28th November 2005, 10:45 PM
At your age if the curve has progressed within the last few or more years the chances are it will further progress

This is the scary partÖ

Phil
28th November 2005, 10:45 PM
Marcilo, I am disappointed to hear you are having difficulty with your medical care. Sounds like you've got a challenge. All you need to do is ensure they monitor you! A series of at least yearly x rays with consultation should be fine at the very least. Good luck!

Phil
28th November 2005, 10:47 PM
Originally posted by Marcilo@Nov 28 2005, 10:45 PM
At your age if the curve has progressed within the last few or more years the chances are it will further progress

This is the scary partÖ
This is not in every case, I do not mean to scare anyone with that comment but its best to be prepared and I found out the hard way.

Marcilo
28th November 2005, 10:52 PM
I have read reviews about this doctor on "insurance" site. Reviews are all good, itís just that I have not had time to talk to him face to face and discuss my issues.

I talked to him once in hallway, during my second visit, for 2-3 minutes and that is all. That discussion was about what I doÖ and how hot it was outsideÖ. :hammer:

Phil
28th November 2005, 10:59 PM
Well if you have not spoken to him fully yet best to get your consultation sorted and give him a chance. See how it goes and what he says.

Jonny
28th November 2005, 11:12 PM
Welcome to SSO Marcilo - I'm 17, UK and had surgery for kyphoscoliosis last July and revision this March. Glad you found us!

mark
28th November 2005, 11:16 PM
Hi Marcilo welcome our wonderfully wonky universe. You should find all the info you need in here we have one member just recovering from Kypho surgery (zerodegrees) ad phils due in this month and andy's due next month. So we should be able to answer most of your questioins and give you any support you need along the way

once again welcome



Mark

jfkimberly
28th November 2005, 11:32 PM
Originally posted by Marcilo@Nov 28 2005, 05:43 PM
I guess I will have to change this "Specialist" of mine
I like to tell (people in the United States) that, as a patient, you are also a consumer. You have a choice, inasmuch as your insurance plan lets you, in your doctors and medical care. If you're not satisfied with your present doctor, shop around. That's perfectly okay. Forums like this one are an ideal place to get the names of good physicians. Then you can go back to your GP and ask for a referral to the doctor you want to see, not just "any orthopedic specialist." Bear in mind that there are a lot of subspecialties in orthopedics, and you want one who deals primarily with kyphosis and scoliosis, especially in adults.

But back to your medical issues... are you sure there was no kyphosis going back just a few years? That's pretty rapid progression for an adult. *frown* You do need to get that followed by the right specialist, because it will start to restrict your lung capacity if it gets too bad.

Good luck with your consult, and please keep us posted.

zerodegrees
29th November 2005, 08:57 AM
Hi Marcilo!

Glad you found us! I posted u on the nsf forum so glad you decided to check us out! I'm John, 36 & am 6 weeks post op for kyphosis surgery. My kyphosis was 80 degrees with a 70 degree scoliosis curve. Its been quite tough but have a fantastic straight back now!

Everyone on here is incredibly supportive and know just what its like to have a dodgy back!

cheers

john

nutmeg
30th November 2005, 04:47 AM
The term kyphosis has two sightly different usages.
A "normal" spine has some kyphosis (backward curve) in the thoracic region, balanced by some lordosis (forward curve) in the lumbar spine.
However when doctors talk of kyphosis they are referring to either an excessively large curve, or one where the vertbrae have become deformed by the curve. One site I visited estimated "normal" kyphosis to be 20-45 degrees which would mean that 50 degrees is close enough to "normal" for it not to be noticed without appropriate X-rays.
I'd agree that you need to monitor it to see whether it is progressing.

Marcilo
30th November 2005, 04:04 PM
Originally posted by zerodegrees@Nov 29 2005, 08:57 AM
Hi Marcilo!

Glad you found us! I posted u on the nsf forum so glad you decided to check us out! I'm John, 36 & am 6 weeks post op for kyphosis surgery. My kyphosis was 80 degrees with a 70 degree scoliosis curve. Its been quite tough but have a fantastic straight back now!

Everyone on here is incredibly supportive and know just what its like to have a dodgy back!

cheers

john
Thanks for your suggestion John. I hope you are feeling great

Marcilo
30th November 2005, 04:08 PM
Originally posted by nutmeg@Nov 30 2005, 04:47 AM
The term kyphosis has two sightly different usages.
A "normal" spine has some kyphosis (backward curve) in the thoracic region, balanced by some lordosis (forward curve) in the lumbar spine.
However when doctors talk of kyphosis they are referring to either an excessively large curve, or one where the vertbrae have become deformed by the curve. One site I visited estimated "normal" kyphosis to be 20-45 degrees which would mean that 50 degrees is close enough to "normal" for it not to be noticed without appropriate X-rays.
I'd agree that you need to monitor it to see whether it is progressing.
Yes you are right, but normally Kyphosis is followed by some degree of Lordosis or other way round.

The reason I donít feel normal is due to the fact that its hard for me to lie down flat on my back with out some kind of pillow support, earlier that was not the case. Yes, I do plan to keep an eye on it and plan to do X-Rays once a year.

Amazed Jean
30th November 2005, 08:20 PM
Marcilo, Hey. I live in Oklahoma and just wanted to say Hi. I'll chat more later - I have a virus and going back to bed.

Marcilo
1st December 2005, 08:02 PM
Hey amazed, will wait for your post to hear your side of story

miss_mystery786
9th December 2005, 05:35 PM
Marcilo,

Firstly welcome! Secondly don't ignore your instincts - if you feel that something is wrong then you need to get it checked out BE persistant!! I feel you should be able to get a correction..

let us know how your doing xxx

Marcilo
10th December 2005, 05:22 AM
Yes you are right Miss Mystery.

I wasnít even aware of my issue so went with the flow and what Doctor initially told me.

He did say one thing Ö"I donít need surgery now" (during my first visit) but he had not explained what can I do so that it does not get worse or why its there in first place, I guess there was a huge communication gap

Marcilo
10th December 2005, 06:05 AM
I was trying to add MRI scans (Pictures) but was unable to do so, not sure what I missed out.

zerodegrees
10th December 2005, 12:56 PM
marcilo, jonny is our resident expert at posting pictures. I couldn't get mine on but jonny solved the problem and posted them for me.

mark
10th December 2005, 06:22 PM
Yes Jonny's the man to see. I would pm him and them e mail him the pics and he will reduce them. Its probably because they are too big they have be 200 pixels by 200 pixels.

titch
10th December 2005, 09:21 PM
200x200 max is for avatars ;-) It's 1024x1024 pixels and 100,000 bytes max for photos in the gallery (that's about 97kb)

I can make whatever changes are needed to the photos as well, you can either email them to me or grab me on MSN to send them. Jonny may be quicker if you can't get me by tomorrow though :P

mark
10th December 2005, 10:13 PM
ooops sorry brains elsewhere tonight (buried somewhere under Best Available Techniques for producing more than 50 tonnes of quicklime a day)

mark + :idiot: = big headache

mark
10th December 2005, 10:45 PM
Becky, their doesn't seem to be any hard and fast rules with kyphosis different consultants use different figures but 40 and 70 are the ones that keep recurring

Marcilo
11th December 2005, 10:01 AM
Pictures did show up, not sure who did the magic. I had made sure Resolution and size are both right. I had 2 more to post, I will give it a try some time later

titch
11th December 2005, 10:07 AM
Ah - did you get a "Xoops_URL was not part of your referrer" (or something like that :P) error? If so, the problem is almost certainly the internet security settings or software that you are running. Basically, because the gallery is a plug-in to the site, developed by a different person than the main system, it has it's own cookie settings, so you need to set SSo as a trusted site, and allow third party cookies. That should do it, but depending on the complexities of the exact software you're running, there may be more that needs doing.

Norton is the worst culprit for this - it can prevent you from being able to download files from perfectly fine sites such as FilePlanet because it blocks the referrer field, so it's quite a common problem.

Marcilo
11th December 2005, 10:11 AM
I was doing it from Work machine, I should try it from home PC and see.

I canít recollect what error I go, I guess it just did not show any error that time

Marcilo
11th January 2006, 09:52 PM
My family doctor told me to undergo DEXA scan to check for bone density (just got that done yesterday), has any one taken this test.?

I was told that it's normally done for females to check for "ostiporosis"

Marcilo
13th February 2006, 08:23 PM
Scan indicated that I have "osteoporosis", not sure how this thing got me. My family Doctor now says that my Kyphosis is result of this, so now I am on "osteoporosis" meds. I have appointment with Endocrinologist tomorrow to figure out as to why I have it. :roll:

Marcilo
7th March 2006, 06:49 PM
They still don't know why I have it but I am on Fosamax now

Thaleias spirit
7th March 2006, 08:00 PM
Marcilo,

I was sent for a Dexa scan about 18 months ago and was found to have osteopenia (bordline of Osteoporosis). I was put on calcium and vitamin D supplemets.

Calcichew is the calcium supplement and Fosamax is the Vitamind D supplement. Vitamin D is what helps preserve the calcium in our bodies.

Let us know what happens with the Endocrinologist also.
I actualy have an underactive thyroid also.

If we can help any further just say so ..

chele

Marcilo
11th August 2006, 09:14 PM
Itís been a while since I have posted on this thread. I have been busy on home front (had a new addition to family) and then on professional front too (switched jobs to be closer to home).

According to Endocrinologist, I have low bone density. Not sure what the count was for my bone density, but itís low. Endocrinologist has started testosterone shots once a month and told me to take calcium pills (50,000 ICU each) twice a week for 5 weeks or so. During my last visit he told me to repeat high dosage of calcium. I am still taking Fosamax