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emarismom
13th September 2005, 01:26 AM
My daughter, age 6, has a 26 degree scoliosis curve due to a Chiari Malformation. The Chiari was operated on and does not seem to be a problem at all at this point. :-)
My question is why is it that my daughter's curve seems to change regularly.
One day it will appear really straight, then the next day it will be really curved again. Is there any "flexibility" or variation to some curves? Even on days where she looks crooked, if I tell her to stand straight, she still looks crooked. On other days, it is difficult to see the curve. does anyone have an explanation for this? :???:

Michelle

sins
13th September 2005, 01:40 AM
It's possible that her curve is just very flexible and does not have a lot of rotation. My God daughter had scoliosis that behaved like that and I think she resolved spontaneously. The curve seemed to change in response to muscle tightness and spasm.
Does she have any pain with this curve? It's certainly worth saying this to your specialist and checking out if it's typical of Chiari induced curves.
I agree, it is a bit unusual.
Sins

emarismom
16th September 2005, 03:17 AM
Hello All,

Just an update. I went to the ped. ortho. today and Emily's curve is now at 20 degrees. Down from 28 degrees pre surgery :niceone:

Obviously i am beyond ecstatic as it is only 10 months post op. The ortho. doesn't think the curve changes, he says it may be poor posture that was a "habit" before the surgery. Whatever the case, the news is great.

tonibunny
16th September 2005, 02:16 PM
Hiya,

Congratulations! That is very good news. If you can encourage her to sit up straight, that will help her curve to remain straight too. Do keep us posted as to how Emily gets on :-)

Toni xx

andrea
17th September 2005, 09:22 AM
That's great news Michelle - an improvement of 8 degrees in only 10 months is fantastic! You must be thrilled.

I do know what you mean about how the curve looks though, and it is postural in my opinion. Sometimes Erin's back looks good, and other times it looks awful, and it just depends on what position she is in (although I do think it is to do with how good I was at getting the brace right the day before as well!).

Let's hope it keeps on improving!

Andrea

Sealy
17th September 2005, 03:35 PM
From what I've read, it's not uncommon for curves to improve or resolve completely following a Chiari decompression surgery. Not every child is so lucky of course, but it appears Emily might be one of the lucky ones :clap: If her curve is now down to 20 degrees, the prognosis is very good.



Sealy