LindysMom
20th July 2005, 05:05 PM
Hello to everyone. I have for some reason been putting off posting information about Lindy's surgery. I guess because it was somewhat traumatic. I've also been busy trying to entertain a one and a half year old who suddnly finds herself in a body cast. Not much fun. She's used to being able to walk and play and now is limited in her mobility.
Her doctor decided at the last minute to attempt the seperation surgery rather than fuse her spine! He said it's a "shot in the dark", but feels it's worth a try. The worst thing that can happen is that it fails and her spine naturally refuses. At least we'll know that we gave it a try. I'm just afraid that we'll have done this for nothing.
We got to New Orleans at about 6:00 in the morning and they admitted us. Handing her over was even harder than I could have ever imagined. A mother's job is to protect her child. To hand her over, even when it was for her own good, actually went against every natural maternal instinct that I have. Her surgery took close to six hours. Six HAND WRINGING hours. When we were able to see her she didn't look anything at all like herself. She was swollen from being on her stomache for so long. After many hours of suffering one of her nurses realized that her pump that was supposed to be administering her morphine had malfunctioned. My poor baby had gone with nothing at all for pain from about 2:00 p.m. until about 1:00 a.m. None of the nurses realized it because the computer in the machine registered that she had been getting it. It wasn't until one of the nurses decided to investigate further that we realized that the morphine bag was almost full. It wasn't their fault. It was just one of those unfortunate things that sometimes happen. After that, they were able to get her comfortable and keep her that way.
She was casted four days later. She didn't like it at first, but now seems to be adjusting to it. I was heartbroken to have her put into the cast, but was relieved at the same time because once it was on, I was finally able to hold her again. She wanted to be held, but they couldn't allow me to until she was casted. My arms physically ached to hold her and it broke my heart not to be able to pick her up when she cried for me.
All in all things are getting better. We go back to New Orleans for a cast change next week. I'm hoping to get some results on a biopsy that was done on her growth plate. Please say a couple of prayers for my Lindy.
I don't mean to sound negative or scare anyone with our story. If I've done so, I apologize.
Her doctor decided at the last minute to attempt the seperation surgery rather than fuse her spine! He said it's a "shot in the dark", but feels it's worth a try. The worst thing that can happen is that it fails and her spine naturally refuses. At least we'll know that we gave it a try. I'm just afraid that we'll have done this for nothing.
We got to New Orleans at about 6:00 in the morning and they admitted us. Handing her over was even harder than I could have ever imagined. A mother's job is to protect her child. To hand her over, even when it was for her own good, actually went against every natural maternal instinct that I have. Her surgery took close to six hours. Six HAND WRINGING hours. When we were able to see her she didn't look anything at all like herself. She was swollen from being on her stomache for so long. After many hours of suffering one of her nurses realized that her pump that was supposed to be administering her morphine had malfunctioned. My poor baby had gone with nothing at all for pain from about 2:00 p.m. until about 1:00 a.m. None of the nurses realized it because the computer in the machine registered that she had been getting it. It wasn't until one of the nurses decided to investigate further that we realized that the morphine bag was almost full. It wasn't their fault. It was just one of those unfortunate things that sometimes happen. After that, they were able to get her comfortable and keep her that way.
She was casted four days later. She didn't like it at first, but now seems to be adjusting to it. I was heartbroken to have her put into the cast, but was relieved at the same time because once it was on, I was finally able to hold her again. She wanted to be held, but they couldn't allow me to until she was casted. My arms physically ached to hold her and it broke my heart not to be able to pick her up when she cried for me.
All in all things are getting better. We go back to New Orleans for a cast change next week. I'm hoping to get some results on a biopsy that was done on her growth plate. Please say a couple of prayers for my Lindy.
I don't mean to sound negative or scare anyone with our story. If I've done so, I apologize.