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LightningRod
17th May 2004, 12:03 PM
I've been posting about this forever... but in each post I have been trying to diagnose myself as to what the problem is. Now, I have no clue. My back is STILL hurting! Been this way for almost a month now... with about one week in between when it stopped, but then just started back again.

It has been three yrs post op since June! They did x-rays! Everything looks okay! What is wrong here? Does this even have anything to do with scoliosis??

Why am I, who normally almost never had much pain, 3 years later, suddenly in pain 24/7? :cry:

And I hate this... opening up my new site... and I was going to try to contact the hospital this summer about giving them my phone number for scoliosis patients to contact if they desire.. (we had a couple do that for us.. wonderful help) But how is it encouraging to talk to someone who is in such pain! :-?

iamcrooked
17th May 2004, 12:25 PM
Is it cold? That affects my back... Stressed?

Carly
17th May 2004, 12:56 PM
i dont know what it could be but i am wondering if some physio or massage would help. Have you seen your doctor? I hope it gets better soon.
And i really like the idea about letting the hospital know of yoru site.... y ou are going to help so many people

mark
17th May 2004, 01:34 PM
My back hurts more when i have a lot of stress around and after playing football. But the dull ache is always there its been around ever since i remember and i have never had surgery yet.

Hope the pain subsides for you soon i know it can be very depressing.

titch
17th May 2004, 01:43 PM
I know it doesn't help with trying to figure out for yourself what the problem is, but in respect of further investigation, perhaps an MRI would be a good next step, as it will show the soft tissues that an xray doesn't (although the metal work causes distortions, which reduce the usefulness of it).

As to figuring it out in a more general way, perhaps you should think through whether there is anything you have started doing that you weren't doing before - any new exercises, differences in the way you do some of your job, different desk set up, new car, driving more, even a change of food or supplements. I've discovered that our car is really doing bad things to my neck, because the seats just don't fit me. That is something that has suddenly become a problem, and now that it is, it's going to be hard to figure out a way to side step the problem.

Also, it's amazing the effect that unexpected things can have. Ages back I started taking evening primrose oil again, to try to help with PMS. Over a period of 2 or 3 weeks, I just ended up in more and more pain, it was really awful. Then I read an article that actually said why evening primrose oil works - it increases prostaglandin levels. Fine - except that I was on NSAIDs for pain relief, and they work by reducing prostaglandin levels, so I was counteracting them. I guess it could be possible in someone who normally has little to no pain, and does not take NSAIDs that starting to take evening primrose oil could cause them to start having pain.

One other thing to bear in mind is that guarding a painful area, while unavoidable, can prolong the pain beyond it's original cause. Massage, accupuncture and various other alternative therapies may help to relieve this and so relieve the problem. It can also take a few weeks to fully heal from something like this, even if you have nothing else wrong with your back, so go easy on yourself and try not to worry too much about it yet, just try to relax and let it heal gently :D

Hope that doesn't all sound patronising, I'm having one of those days where I can't really tell whether what I've written comes across that way. I really hope you can get some relief from it soon :-)

Kayla
17th May 2004, 09:05 PM
I am in pain a lot of the time too but for different reasons..I think but you should still post your site! I know that people would like to know your experiences. I know they will get scared when they hear your in pain but hey thats the fact that you may get some pain

jfkimberly
17th May 2004, 09:42 PM
Kayla's absolutely right. Make the information available. It would help so many people to make an informed decision and not be surprised by things down the line.

You said you had surgery 3 years ago (in June) and until recently you had no pain? I think you should look at other possible causes, at Titch suggested, and stress to anybody who does contact you that you had almost three pain-free years. You may be hurting now, but you weren't for so long. You don't know what's causing it, so no need to tell prospective surgery patients that it's the result of surgery. Just tell them your experience, and let them wonder right along with you.

Meanwhile, I really hope you figure it out so you can fix it, or it just goes away on its own. Feel better!

sins
17th May 2004, 10:44 PM
I don't know what's causing your pain, but if the x rays look good then it's not caused by curve progression or instrumentation loosening.if you've injured your back then expect it to take a while to recover.It's 21 years since I've had my surgery and have had back pain on and off due to various injuries and wear and tear.Luckily nothing has ever lasted longer than 12 weeks for the most severe episode.Overall I've had very little problems but if it persists consult your specialist about getting a proper diagnosis.As Titch said an MRI scan would be good.If it's a dull muscular pain it should heal over time with medication but if it's severe and sharp enough consult your surgeon.It could be anything from bone spurs to infection, so check it out and put your mind at rest.I really hope it improves soon and you can move on with developing your fabulous website.Don't worry about telling prospective patients about your pain. Honesty is the best policy and people should be able to make an informed decision regarding the surgery.
Sins

LightningRod
18th May 2004, 05:18 AM
Thanks everyone! You guys have a way of really putting my mind more at ease with this stuff! :) :rox: :-)

I finally got an appt with my doctor.. next monday (23rd.. I think) it was the earliest we could get.

I've been trying to think of whether or not I have changed something in my routine... but I have no idea... no new car, job, food, excersises... nothing that I can think of. Which makes the pain altogether very weird.

And I don't think I am stressed. I am pretty much a pollyanna 24/7 :D
And it is rather hot here (mostly 70-80 degrees)... summer time....

And I think you guys are probably right about continueing to talk to people about scoliosis through my site, and by other means... because I guess most of us have pain at some point... it is probably best to be honest..... kinda like saying "I have some pain, but I don't let it get in my way... doesn't mean that life is over... or necessarily that anything is wrong with your fusion..." sorta thing. Which is actualy what I have gotten sometimes..... People who become almost depressed at the thought of having scoliosis... I actually had a girl e-mail me one time, and reffered to her scoliosis as a 'cancer.' :cry: And it sounded like she was just struggling on whether or not to have surgery...

But that is also the same reason why I am hesitant to mention the pain part.... spinal fusion can be a scary thing... and a big decision to make, I don't want to scare anyone out of it... I will never regret mine.

Tonight, I feel some better. Hurts a bit. But nothing like this mornig when i first posted. Very odd. It seems like everytime I finally break down and tell people that I am in pain, the pain starts to go away... lol.. maybe that is just what I should do from now on to begin with instead of trying to keep it all to myself to figure out. :oops:

Maybe if it keeps up, and the cause elludes even my doctor... I can mention an MRI. I don't think I have ever even had one of those to begin with.... probably could be good for me...