View Full Version : So Mad
25th April 2005, 07:50 PM
OMG I'm so pissed right now I called Langley cause Lauren is running a temp today and doesn't seem herself so I wanted to see if they thought it would be a problem in the morning for the MRI that's when I was told oh sorry you aren't schedule for the MRI but just with the peds specialist who will decide if he wants and MRI done WTF they were so concerned Friday they were goingto admit her so it could be done right away then her doctor here spoke with the specialist who said no need to admit her I can see her on Tuesday in the morning. He hasn't even seen her or her records. So I called his Nurse soon as I found out that the MRI isn't what we are scheduled for and she said no he will have to order it if he thinks she needs one but that if Langley was that concerned they shouldn't of dropped the ball this is crazy I want to just scream as they can't tell everything just from the x-rays and the MRI could also help to rule out leukemia due to organ enlargements. sorry I just really needed to vent. Cathy
25th April 2005, 08:01 PM
Oh Cathy, I am so sorry this has happened. I can totally understand your frustrations and anger. When it comes to your children, there really is nothing like an incompetent medical system to get you where it hurts.
I'm sure when you see the specialist tomorrow that he'll decide she needs an MRI and urgently. Hopefully he'll manage to get you in really quickly and this delay won't mean a delay in her treatment, whatever that may be. It does sound like a lot of people are involved in her diagnosis and care - perhaps once you get a specialist on board this will calm down a bit and you'll be able to have more direction over what happens.
I'm really sorry, i don't know what else to say. Nothing will make you feel any better, and never apologise for venting on the site. That's what we're here for.
Hang in there, and make sure you're extra prepared for the specialist tomorrow. Write down all your questions and make sure you're able to concentrate on what he says and make sure he answers your questions and puts your mind at ease.
Good luck and big hugs :squeeze:
25th April 2005, 08:21 PM
The stage you are at right now, has to be the worst part of all of this. The first week of finding out about my daughter's scoliosis will be etched in my brain for the rest of my life. In terms of significant events, it's right up there with child birth. The only way you will come to terms with this is simply by talking to friends and family and most importantly having a few good cries throughout the day.
Whatever the diagnosis is, you and your daughter will make it through. She will look at you with an innocent trusting smile and not realize what is happening. For her it's another day filled with toys, friends and fairy tales... this is what broke my heart the most.
25th April 2005, 08:45 PM
You're going through the most traumatic and frantic part of this right now.Don't worry too much about the Mri right now.If she's ill and has a temperature they wouldn't be happy to anaesthetise her anyway, so it's not a problem.It's still avery good opportunity to meet with the specialist and I'm sure it can be scheduled fairly quickly.Unfortunately it's the inconvenience of the whole thing.
25th April 2005, 08:49 PM
cathy, Ah yes the medical field at normalcy. They are boondoggelers everywhere. The right hand doesn't even know that the left hand exists. You have to keep in mind that medicine everywhere is a giant machine. Health care workers intend the best but it is sometimes lost in transistion. Sorry you got bitten by the scheduling bug. It seems to get everyone. I cannot imagine how you feel. I'm sorry and I'll say an extra little prayer that things go more smoothly. Hope lauren feels better tomorrow.
25th April 2005, 10:03 PM
I am another scoliosis mum, my daughter is 19 months and was diagnosed with idiopathic scoliosis at 9 months. Like yourself, our initial appointments were fraught with worry about the unknown, our ortho suspected that Niamh was suffering from some sort of syndrome, and it was not until we had an MRI and seen a paediatrician that these were ruled out.
I really hope that you get sorted out with the MRI appointment soon, and that your worries can be alleviated also. The specialist tomorrow may be able to rule out a lot more things than you imagine without the MRI. Will this specialist be Lauren's primary carer from now on or will you be referred on to another specialist?
Hang in there, will eb thinking about you both
26th April 2005, 04:33 AM
As far as I know we will be referred out as the military isn't use to things like this in small children. I sure hope he can give me some peace of mind before we leave that hospital tomorrow. They do have a children's hospital that I've been told is wonderful just hope that we get sent there. I'm keeping my mind open and hoping for the best at this time. I need to get to bed as I have to leave here by 6am to get there in time with all the traffic. Thanks everyone will let you'll know what I find out tomorrow night. Cathy
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