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Phil
2nd March 2005, 08:54 PM
Over the last year or so, i have been feeling really tired all the time. I sleep about 8-10 hours a night. My tiredness seems to be in tow with my back/kyphosis getting worse.

Just wondering if anyone has any comments on this.

BTW, my first thread (excluding intro) so easy going. :D

titch
2nd March 2005, 09:09 PM
You haven't said anything about pain, but I know from experience that pain or even discomfort (in fact, I would make argument for discomfort in some ways being worse than pain) can interrupt your sleep enough that you need more sleep to get the same amount of rest, so if it's gone hand in hand with the curves increasing, that could be part of the reason.

Phil
2nd March 2005, 09:13 PM
Yeah, pain is pretty constant. No moreso at night. My sleep seems of a good quality when i can actually get to sleep.

BlueIce
2nd March 2005, 09:40 PM
just had my blood drawn at the doctors because I've got real bad headaches every once in a while, and he thinks it might be shortage of iron, which causes almost constant tiredness
But I've read somewhere that people with scoliosis get more tired and need more sleep because apparantly we have to use more of our energy to stand up and all. I don't know if I'm making any sense, it's hard to explain in english :)

Amazed Jean
2nd March 2005, 09:47 PM
Phil I have always been convinced that scoliosis does make you tired. I know its not just the bad lung function in my case but having stuff in the wrong place can't be easy on your body. Plus there is the whole stress thing so just try to get whatever rest you can. Its a great coping thing too.

sins
2nd March 2005, 10:33 PM
I'd have to agree with amazed.I think from the age of 16 I always felt so tired/run down.I could sleep for hours on end and still feel wrecked.
get a thorough check up with your gp and ask for a thyroid function test.Many patients with spinal curvature may have slightly underactive thyroid and this can cause those symptoms.I also think stress is a major factor in tiredness.I always joke about wanting to hibernate in winter,perhaps we're just very dependant on sunshine for that melatonin kick :-D I don't think there's anything very much wrong with you.Sorry to hear that you're in so much pain.Do you have Scheuermann's kyphosis or postural kyphosis?
Sins

Phil
3rd March 2005, 12:04 AM
Scheuermanns kyphosis. I have had blood tests, thyroid test etc about 6 months back. GP tends not to be too helpful at all.

Thaleias spirit
3rd March 2005, 12:15 AM
Phil,

In my own case I was dagnosed with an underactive thyroid when i was 17.. when its not under control then i could sleep all day and still wake up tired. it may be a case of anaemia too .. in which a pharmacist could maybe even recommend a supplement to take for a while, see if it makes any difference.

but keep pushing the doctor til you get answers ... eventually they will listen.

chele

Little~shedevil~dee
3rd March 2005, 12:33 AM
i'm allways feeling tired but i think its because i'm not getting enough sleep
last night my back was hurting so much i didnt fall asleep untill 5am and i didnt get up untill 3pm

Kayla
3rd March 2005, 01:34 AM
I always have fatigue and pain is a source I guess, I hope you figure something out!

Amazed Jean
3rd March 2005, 05:27 AM
Phil, I just thought of something I didn't get until almost too late. It is perfectly fine to say I'm tired and I need a nap. Then go take a nap complete with jammies and your pillow and room darkened whatever lets you totally rest. Scoliosis does wear on you. Take the nap. You aren't like everyone else.

mark
3rd March 2005, 12:55 PM
I find it hard to get to sleep on a night but once i am asleep thats it a nuclear blast can not wake me.

I am in pain most of the time which gets worse steadily as the day gets on the pain is right up spine from the bottom of back to my shoulders i also have a chest pain.

I tend to sleep on my side as if i lie on my back i get the sensation of drowning and start to get panic attacks which i have suffered from since childhood.

Mark

jfkimberly
3rd March 2005, 07:05 PM
And, of course, we can't overlook the obvious. Kyphosis puts pressure on the lungs, and 62 degrees isn't exactly a mild case. You should have a pulmonary consult to assess your lung function.

Can you describe your tiredness? You say you sleep 8 to 10 hours a night... so is it just a feeling of being run down? How do you feel about jogging/running? Are you bothered when you encounter a set of stairs? What happens when you exert yourself physically?

butterflylr
3rd March 2005, 10:49 PM
I always seem to feel a bit tired too. As far as I've been told, I shouldn't have reduced lung capacity as my ribcage apparently is shaped quite well (I guess you could say that :P)

Anyway, do you think there is also a connection between my scoliosis and how I can't breathe worth anything when I run or do physical activity? Other than that I'm pretty much fine. I just have to take a big breath now and then.

jfkimberly
3rd March 2005, 11:33 PM
In my case, I can't take a big breath. Physically, it's impossible. I equate it to putting a tight steel band around someone's chest that restrict's their breath to about 1/3 of what they normally would take, and then telling them to go about their day. They would have to breathe faster and shallower all day long just to do the normal things. Just sitting still, it's not a problem. But when you have to do something like run, which increases your body's demand for oxygen, it leaves you panting for air. It's a horrible feeling, like you're suffocating.

But my lung capacity is severely restricted. With mild impairment, it probably isn't even very noticeable consciously, but you still may be working a lot harder than "normal" people (or even harder than you used to before your curve progressed) to keep your body supplied with oxygen without realizing it. That could leave you pretty tired by the end of the day.

The best way to find out is to have a consult with a respiratory/pulmonary specialist.

Phil
4th March 2005, 01:32 AM
Originally posted by jfkimberly@Mar 3 2005, 06:05 PM
And, of course, we can't overlook the obvious. Kyphosis puts pressure on the lungs, and 62 degrees isn't exactly a mild case. You should have a pulmonary consult to assess your lung function.

Can you describe your tiredness? You say you sleep 8 to 10 hours a night... so is it just a feeling of being run down? How do you feel about jogging/running? Are you bothered when you encounter a set of stairs? What happens when you exert yourself physically?
I can run and jog with not to many problems. I am of a reasonable fitness. Its not exhaustion, but tiredness as in sleep. Feels like i could sleep forever, and how i am feeling today would not be a bad idea. I dont have many problems with things physical like stairs. I have booked an appointment with docs, not as if they will be any use. But i intend to be a bit more forcefull. I have a list of things to bring up. :D

sins
4th March 2005, 10:29 AM
That's a good idea Phil, to be honest, with 62 deg kyphosis, it shouldn't put too much pressure on your lungs.It's not like sharp angled scoliosis which pushes a lung against the side of the rib cage and compresses it.
I suspect you're of regular height and build, your main problem being with the pain caused by the scheuermanns.
Unfortunately, you do need to be forceful with your doctors.If you're not, they'll assume that all is ok and you'll not get the treatment you require.We have a group of ferocious mothers here who'll teach you a thing or two about dealing with the NHS. :evil:

mark
4th March 2005, 12:49 PM
You have to be careful what you say to consultants in my experience the last time i saw the orthopedic consultant i mentioned the breathing difficulties and pain i was experiencing he promptly referred me to the chest clinic and wiped his hands of me

My experience of consultants they just want meet government waiting list targets and not actually listen to the patient whos's been suffering most of there life

Phil
4th March 2005, 01:03 PM
I agree, i have already been fobbed of to the respiritory clinic once.
I have had enough dealings with consultants, i know what buttons to flick now. But when it comes to GPs, i am lost. They seem like they dont care and want you out as soon as possible. I feel bad seeing them cause i feel like i am being a pain.

We will see what they say this time, but i had blood tests about 6 months back and all appeared clear. Not sure what else they can do. May be one of the things i end up dealing with myself.

sins
4th March 2005, 03:33 PM
One useful thing to do would be to ring the hospital where your surgery will be and ask when you're due to have your pre op assessment.During that you could mention this to the docs,and before surgery they'll do a full pulmonary assessment on you as you'll be having anterior surgery first.They might also do an MRI scan.Gp's know very little about scoliosis and kyphosis and are too busy to be bothered to get up to speed on the topic.Most of the information that you'll get will be as a result of your own research and from message boards like these.

Phil
4th March 2005, 05:05 PM
I only was offered surgery 4 weeks ago, and accepted to doubt they will have a date for anything yet.

As i said in another thread, i see a GP a little while ago. He said my blood tests were clear sixth months back and see little point in doing anymore. So yeah, own research!